Hi. My father died from this awful disease over 23 years ago at the young age of 56 (my age now) and sadly my brother is also fighting it and has been for over 5 years. He lives far away so I'm unable to see him but am thankful that I saw him for the first time in 10 years about 3 years ago. After messaging him recently he has said that his pain is becoming more frequent and this makes me very sad and I'm not able to talk to my family because I don't want to upset them.