Hi all
I have been dealing with Lymphedema for the past 10 years. I have had 7 attacks which ended up in Hospital being injected with antibiotic for a week on each occasion.
I am petrified of this problem. To be honest I feel cancer was the easy part but this is a constant struggle. The biggest problem is that nobody understands the urgency of it. It's scary , any cut, burn or mosquito bite etc can send me in a painful fever which if I'm lucky I'll get to hospital in time.
For the past 3 years I've been on constant antibiotics. It's not nice but at least I've been lucky haven't had an attack during this period.
Although sometimes, like today, I get a red rash and a hot arm. There are no cuts as I hardly use my right hand anymore but it's very uncomfortable and it's like my skin is stretching. Does anyone get that? Or know what it's about?
I will be paranoid for the next 3 days or until it subsides. There is no point calling anyone because Sepsis hasn't happened, could do but meanwhile no fever or pain yet.
Will the medical profession take this seriously? they constantly tell me there is nothing they can do and they can only give me gloves (which never fit). I am constantly living in fear.
Thanks
Sisi
