Melanoma

Hi. I was diagnosed with Melanoma Stage 4 in May last year. I have only just found the strength to join this site as I have avoided looking on line about my diagnosis. It's taken me a year to feel that now is the time to start looking into things. Due to COVID all appointments are done over the phone including receiving my initial results from a mole being removed. This was a complete bolt out of the blue and I still can't get the conversation out of my head. The nurses at the hospital are excellent and have said if I need to ask any questions they are available. I just find it very difficult over the phone. The last 12 months have gone in a blur and although I have a very close family I thought it would be nice to get in touch with people who are going through or have gone through the same

Parents Reply Children
  • Hi Angie

    many thanks for replying. It's very much appreciated. 
    yes I started on target therapy in September last year. I go to my local hospital every 4 weeks and have my bloods, weight, BP taken and then later that day I have a telephone appointment to check how I am and whether I have had any issues with my meds. They then issue my next 4 week prescription. 
    From the start in April last year I have had 2 on site appointments (both with my consultant). The initial contact with my GP, dermatologist and plastic surgeon were all telephone appointments and I was given results etc on a telephone call. The last one was 3 days before I was having an operation to remove a lymph node in my groin to advise that they wouldn't be doing the op because the latest scan was showing that the melanoma had spread and so I needed to start treatment instead. 
    I then had an appointment with the consultant to go through starting treatment. Can't remember much from this because I was too uptight. 
    I had my 2nd appointment recently with the consultant to discuss changing my treatment to immunotherapy 

    The target therapy treatment has been great and I have been very fortunate not to have any side effects. Initial results have been fine but the lymph node in my groin has suddenly come up. This was a few days after my COVID jab so I thought it may be to do with that. The consultant has decided to give it another 6 weeks and will then scan again to see what is happening. 

    apologies. I know my reply is a bit long winded. I've even cut it down a lot !!  
     

    kind regards 

    caz