Hi 

I've just had a call from my surgeon. Had hysterectomy on 30/7 and was today told it is stage 3 (spread to right Overy and to lymphnodes) grade 3 (endometrioid adenocarcinoma) so will be reassigned to an oncologist at a hospital in London. Initial meeting in 2-3 weeks to discuss plan of action.

Also feeling positive but would love to chat to someone going through the same thing.

Thank you Ben.  

Hi Swedemella

I am nearly through all my treatment, so you sound on the same diagnosis, although my ovaries were clear, just one lymph node was 3mm.    My oncologist put me on 4 chemo treatments of paxo  and carboplatin, so had 3 hours of Paxo  ( it makes you lose your hair) and 30 mins of carboplatin.  I had to have the paxo diluated with saline as I had a bad reaction when it hit my vein ( felt like razor blades going up my arm).   I did have a bad reaction on the 2nd night of the chemo, were I had pain in my feet and legs.  No body else has commented on having anything like this, so I do not know if it was down to the surgery.  I truly hope you dont, and you ride through the chemo.  On a positive note, I am through and now on 5 weeks of radiotherapy, where I go every week day.  I am on my 4th week, so one more to go after this week.  Then I have two brachotherapy, of which I havent had the full fitting etc yet.  This will be delivered once a week, so only two weeks of this.   Finally i will be through all the treatment I hope, and I am not sure how they assess etc at the end of all the treatment, so I can keep you posted.

I have brought 3 wigs as my hair fell out, but findingin this  hot weather I will wear a sun hat and glasses.  the COVID situ has been good in the fact I have been wearing a mask when out with sunglasses so no one recognises me.    I have kept my cancer low key as I do not want people looking at me and 'feeling sorry' and having those 'poor you' looks from people who are not close.  But everyone is different, as some put it out there, but I am happy and positive with thespeed and attention of the hospital services in Nottm.  My GP was ineffective and unknowledgeable about this area.

Good luck with your treatment plan, you will be in good hands. 

Hi and good morning, 

Thanks for your reply. I'm seeing the gynae oncologist on 24 August to discuss the plan of treatment. I've also had an appointment scheduled for 23 November for a follow-up.  I've also been very happy with the NHS, absolutely brilliant. My friends and family have been there for me. I'm living on my own with my children, 17 and 19, but I'm close to my ex and his wife so the children has got a good support network.

I'm not sure how I'm going to feel about loosing my hair, but I guess it's a small thing to deal with (and it should grow back). Thanks for sharing your experience.

I've read up on the different side effects so hopefully won't be too surprised when/if I feel really ill. 

I'm happy that I will have both chemo and radiation, feels like a "let's zap the hell out of it" instead of "think we got it all during surgery".

I will keep in touch and until then enjoy our wonderful summer.

By the way, my daughter goes to Uni in Nottingham, starting her 2nd year in September.

Lots of love 

Jess