New here ,it's all happened to quickly

I just need to vent my frustrations and feelings of devistation and feeling so helpless.

My mum was taken to hospital with an infection on the 19th February.  They said she has sepsis. The day after,after more scans as she was in alot of pain. We got the devestating news she has aggressive bowel cancer that has spread to her liver. Incurable but treatable.

They spoke about treatment.but had to get the infection under control first.

 

4 days later whilst in hospital she had a stroke. 

My dad was called in for a meeting with my mum and they said that mums body would not withstand any treatment. And they are struggling to get hold of the infection.

They have said weeks not months.

With covid restrictions this has been absolutely heartbreaking.   Someone tested positive in her ward resulting in her and dad having to isolate for 10 days. Meaning no visitors.

Mums home now, I'm pleased as thats what she wants. 

But we are now two weeks into "weeks not months"

I'm trying to stay strong but it's so hard. 

She also has COPD

I don't know what are the effects of the COPD, stroke , cancer or end of life anymore. 

I don't know how long we have but every time I wake up I know I'm a day close to losing my mum. 

 

All this in less then a month . 

 

*Mum passed away this morning at 3.47 ( April 7th) 

 

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  •  

    Hi Lmmrose,

    I am so sorry to hear about your Mum's problems and, understand how devastating this must be for all of your family. It sounds as if she has had a particularly unfortunate experience, with all of these additional complications. I lost my own Mum to secondary breast cancr, which had spread to her liver, lungs, bone and brain. That was many years ago and I am still aware of how heartbreaking  this was. 

    A situation like this is never easy to cope with. It affects the whole family and is particularly difficult with the current pandemic. I am so glad that you have been fortunate enough to get her home to spend her final days amongst her loving family. All you can do is to be there for your Mum. Tell her how much you love her and don't leave anything left unsaid unsaid. Is there anything that she wants to do or anyone she wants to see? If so, you could try to help with this. Try to make the most of what time you have left instead of worrying about how much time you have left. This can be a time for making memories, if at all possible.

    A prognosis is just a 'guesstimate' about how much time we have left. Many go earlier, whilst many outlive this by a long time. You don't say how old you or your Mum are, but this is a difficult situation to deal with at any stage of life.

    You are all in my thoughts and prayers and I am always here for you.

    Please keep in touch.

    Kind regards,

    Jolamine xx

  • Thank you so much for your reply, it's so nice to be able to just talk with people who can relate but are not involved.hope that make sense? 

    I'm so sorry about u mum too.

    Unfortunately mum is almost bed bound now, she is only gets up when carers come in to dress her, or to use the commode.  She always has her oxygen on too.  My mum had breast cancer a few years ago too. But with radiotherapy was able to beat it.  

    All she wanted to do was get home from hospital. So I'm glad that she is there for her final days.

    She turns 60 next week. So not at all old. 

    It's just an incredible sad situation. 

    I feel so out of control. I don't know what happens next. Or how quickly things will deteriorate. 

    At the moment we can have a conversation still with her but is a little limited as her stroke. ( Or so I assume)

    So just sitting with her chatting over the weekend has been presious.  But mother's day I had to say goodbye just incase. And will do now everytime I leave her. It's just so sad x

  • Hey [@Lmmrose]‍ 

    I'm so, SO sorry to hear about your mum. Unfortunately, if you read my recent posts, your situation sounds all too familiar to me. My mum was admitted to a&e second week of January, with back pain. After numerous scans, we were told she had advanced lung cancer, which had spread to her spine, and she had to have emergency radiotherapy. Told we could maybe have some palliative chemo, but mum was put on oxygen, but then also had caught an infection. Her infection deterioated her situation so much, we were told unfortunately there was nothing they could do. She was bedbound and unable to move. This all happened in a three weeks. I found it unbelievably hard to even catch my breath, and my mum was only 55. 

    You have my absolute genuine sympathy for what you're going through, and if you ever want to speak, please feel free to message me. 

    The only tip that I can give to you, is when you can, spend as much time as you can with her. It's something that really I'm unbelievablely grateful for, as like you, my mum was not longer in hospital which would have been even more devastating.

    I hope you have as much precious time with your mum left as you can, and I'm thinking of you, and sending lots of love your way XX

     

Reply
  • Hey [@Lmmrose]‍ 

    I'm so, SO sorry to hear about your mum. Unfortunately, if you read my recent posts, your situation sounds all too familiar to me. My mum was admitted to a&e second week of January, with back pain. After numerous scans, we were told she had advanced lung cancer, which had spread to her spine, and she had to have emergency radiotherapy. Told we could maybe have some palliative chemo, but mum was put on oxygen, but then also had caught an infection. Her infection deterioated her situation so much, we were told unfortunately there was nothing they could do. She was bedbound and unable to move. This all happened in a three weeks. I found it unbelievably hard to even catch my breath, and my mum was only 55. 

    You have my absolute genuine sympathy for what you're going through, and if you ever want to speak, please feel free to message me. 

    The only tip that I can give to you, is when you can, spend as much time as you can with her. It's something that really I'm unbelievablely grateful for, as like you, my mum was not longer in hospital which would have been even more devastating.

    I hope you have as much precious time with your mum left as you can, and I'm thinking of you, and sending lots of love your way XX

     

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