What to say?

My older sister was diagnosed with a Meningioma in 2016 after collapsing with a seizure. She had one operation and they could only remove part of the tumor as its near her optic nerve. Here we are in 2021 and the tumor is starting to grow again, her consultation has said its inoperable now and have offered her radiotherapy. We are very close, but she's naturally anxious about dying and very scared. How can i support her as i don't live near her so can't really pop round to be with her. I am scared for her and can't imagine my life without her in it. But i am struggling with what to say to her. She is married but her husband isn't very supportive. Thank you for your help. 

  • Hello

    very sorry to hear this. As someone living with terminal cancer, aged 56 maybe I can offer you some help? Obviously I see things from the patients perspective, and that could be useful. The main thing I would say is to take the lead from your sister . If she seems to want to talk about certain matters, allow her to do that. Dont try to steer the conversation around to what you think it should be. What type of personality is she? We are all so different. Would she want someone to just listen? To talk through practicalities? To openly talk about the fact that the cancer is stage four or incurable, and the implications of that? 
     

    For me, consistency is a big one. Maybe check in with her regularly, once or twice a week? Follow through. Don't offer to call, then forget to do so, or avoid the situation through fear. It's hard on everyone, the patient, and loved ones, but she really needs your help. Generally, advice giving is not welcomed. She will have to make her own decisions about treatment etc. I had people telling me to stay strong, but I felt it as a pressure. It was well meaning but I actually needed to cry, to rage against the injustice of it all, to just be myself and acknowledge the reality of what is happening. 
     

    I do want to talk about end of life, not in a morbid way but in a realistic way. But we are not all like that. Some people prefer not to. I get the impression that you are still processing a lot of this yourself. You need help and support also. Some describe cancer as a marathon not a sprint. It's a long haul. Sorry, I don't mean to be negative! Just realistic. It's OK not to know what to say, you are human. Something like' I love you, and I am so sorry you are going through this' is s a good start.

     

    take care, Karen