Hi everyone
I had a bloody discharge from my left nipple that I found just before Christmas. I was seen in the breast clinic mid January and after a mammogram and scan which showed nothing, the consultant wanted to do a major duct excision to rule anything out. He thought it was most likely a papilloma. I had the Hadfield proceedure to remove my ducts in February and he had to go quite deep on one duct. I went for my results yesterday and there was a papilloma as suspected but also a small area of lobular carcinoma in situ (LCIS). The consultant explained that this just means I have a slightly higher chance now of developing an invasive cancer and I will be monitored for the next 5 years. This has totally freaked me out. It was my mums anniversary yesterday too, she died suddenly of sepsis and I had to bring my kids up without her support and my kids lost the experience of a loving Grandma. My mums mum also died suddenly when we were kids. I don't want my kids or grandchildren to go through that pain.
I have big boobs and worried I won't find any lumps if anything develops. I've read lcis is rare, only 735 people are diagnosed per annum but the rate of invasive cancer at 20 years is 20%. That sounds huge to me. I'm 47 so I have a decent chance of developing cancer in my 60s. That's still so young.
I'm due a follow up in 6 months so I want to ask about genetic testing (my dad had prostate cancer which I've learned is sometimes genetic cancer and a few cousins and aunties on my mums side have had breast or bowel cancer) and I'm going to ask about tamoxifen. My head is spinning with it all. I know I'm more fortunate than others as I've not actually got an invasive cancer, but my anxiety is through the roof. I'm sorry for the long post and if anyone thinks I'm dramatic, but just wondering if anyone else has any experience of this. Thank you for reading and listening.
