Hi,
I had a lumpectomy last year. I decided not to have a lymphomode biopsy, chemo or radiotherapy and just stick with tamoxifen.
Since starting tamoxifen I have suffered with back pain, I even had a spinal injection which didn't provide any relief.
A couple of months ago the joints in my right hand started to swell and one of my fingers is no longer straight.
I stopped tamoxifen a couple of weeks ago and all of my pain is gone!!!!
My cancer specialist has agreed that I can go without tamoxifen as it has massively affected my quality of life.
It's so scary that none of my doctors or physiotherapist made the connection.
I am wondering if anyone else has stopped tamoxifen early for the same reason and what might happen next.
I'm mostly scared that it's a coincidence and the pain will come back
X
