Hello pPicasso14

I'm sorry to hear about your recent diagnosis and that you're also living with a long-term health condition. Undoubtedly this will have made things difficult for you. 

It's good to hear that you've been able to use CBT techniques successfully to manage some of the symptoms of your ME. Whilst the chemo will certainly have an impact on your physical health, we know that having a positive mindset can really help with managing those side effects so I'd encourage you to continue using those techniques. 

Do speak to your breast care team and let them know about how you're feeling and I'd also encourage you to get in touch with your local Maggie's centre. Many of them are running online groups and classes and you may find it helpful to join a support group or relaxation class. 

If you'd like to chat things through with one of our nurses at any point you're most welcome to give them a call. I'm sure they will be happy to offer some support. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040. 

I hope this helps and that things improve for you. 

Best wishes, 
Jenn
Cancer Chat moderator 

Thank you for the reply.  CBT has been and will be part of my life.   I must admit it has helped over the past few weeks considerably.  I had my second round yesterday and, although exhausted from the experience, it was not as bad as the first.  I think my body went into shock the first time.  Still waiting for the side effects to kick in.  I have a good circle of support from friends and family and, at the moment, not ready to join a group but will definitely keep it in mind as I feel probably, in the future, I will feel the need.  
 

Thank you for the information 

Hi,

I'm really sorry to hear about your diagnosis. I've had M.E since I was 14 , I'm now 52 so I've lived with it most of my life. Several years ago I had double pneumonia and my M.E worsened to the point that I was classed as disabled and had to give up working.

Last September I was diagnosed with stage 4 inflammatory breast cancer. I've got one session of chemo left (out of 8) after which I'll be on target drugs for the rest of my life. During my chemotherapy I've had covid and neutropenic sepsis and I'm currently battling anemia and pneumonia. 

It's certainly not an easy road to go down but the thing that keeps me going is I'll have more time with my family.

Unfortunately I can't suggest a miracle solution it's tough and likely to get tougher. You've been given an end date so focus on that. Listen to your body. If you're not up to doing something don't do it.

Over the years I've learned to be kind to myself. I have days when I can't get out of bed. Other days I can make it to the sofa. I rarely get dressed as it exhausts me and I no longer do anything in or around the house. I sleep when I need to which is often a couple of hours during the day before an early night. I also eat healthily to provide my body with good nutrition.

Good luck with your treatment and focus on how different things will be at the end of it.

Take care 

Barb