Hi, have found this chat after researching what is happening in my body, am hoping this may resonate with someone in a similar situation and that you might help me to not feel so helpless, and like am a hyopcondriach. I feel so rubbish about feeling "ill" all the time, and that when people ask how I am I just now wanna say yeah good, as am sick of hearing myself say just how rubbish I feel.

Just over 2 years ago I was suddenly very poorly, in agony in fact with pain in my left groin, it was up there on the scale in terms of pain levels and how bad it was, therefafter I have since had lots of pain in my groin and stomach. I was later diagnosed with diverticulitis and something called BAM after a colonoscopy and a SeCHAT scan.

I went on to suffer from a condition called Iritis, inflammation of the eyes often caused bu an underlying health reason, I have had this 4 times in the last 2 years, its agony, and I currently have it again as am writing this now (hence one eye typing is taking much longer :) 

All of last year I kept complaining of pain, and telling my husband I felt more bloated, my tummy was hard, it was uncomfortable. I just thought I was entering menopause, getting fat, and that this was life, yet at 48 felt fatigued and like I was running on empty all the time. Then during our first lockdown, having not had a period for 7 months I started to bleed, it was like i'd saved up 7 months of menstruating and it all came at once and for 3 weeks. I couldnt visit my doctor and could only be dealt with over the phone. I was put on norithisterin to stop the bleeding, but bled through this, so was put on HRT as well, the 2 combined made me poorly and affected my breathing so I had to come off the norithisterin, and they doubled my HRT and I stopped bleeding. Whilst my Dr's surgery are great at getting help, its always different doctors, and despite various blood tests nothing was showing, my inflammation markers were down, I was saying Im not right but they were saying I was ok.

Then in October when I spoke to a lady locum Doc and said look am due a review on the HRT as I was admitted this in lockdown, Ive not been checked over, it doesnt make me feel amazing like people say it would, am bloating more, something isnt right, so she said, lets just get you a scan to get you checked over. This lady changed my life, shame she was a locum and I cant thank her. I was sent for a vaginal ultrasound. As I hopped on the bed, I said, look I dont want to be dramatic, but I feel like I have something in me, have been saying this all year, and I feel like Im being made to appear mad. 

I was told by the radioligist that I had an abnormal mass, and that it was very large and that it would require an MRI and surgery, this was 3 weeks prior to Xmas, and during our pandemic so was told this wouldnt be overnight and may be sometime. The GP then phone me that night and was shocked and suprised, whereas I had a calming " I told you I was ill " feeling. I was told I had 2 Cysts, one big one approx 18cm's, and 1.5ltrs of fluid, and another smaller one, they both appeared to be simple cysts however the first one was a concern as had pushed all my organs out of place. Suddenly things started to make sense, forever on the loo, painful walking, back ache like have never experienced before, all these things starting to click into place. I was told the next stage was to wait for Gynae and that would be in the new year.

Fast forward through Christmas, I was quite poorly, breathing was eing affected, I felt like I needed to yan and take deep breaths all the time. I was struggling to eat, I was full within a few mouthfulls. I like my food, so to not be able to eat, thats not me. Anyway, I started back at work after Christmas and then the day after was hit by excruciatting pain so went to A&E, again due to covid its all a mad world out there. The nurses were amazing and could see the discomfort. I couldnt been seen that day so was sent home with a plan to get me back in to be drained for comfort. 

So back I went the following week, and had Cyril the cyst as we named him drained, he had grown and was infact 2.2ltrs of liquid. I felt like I was walking on the moon when I got up from that bed as instantly felt the difference! The staff were amazing, couldnt praise them enough. Had had CA125 tests and no high proteins found, and the fluid looked like a bag of wine, nothing nasty.

Sadly I got an internal infection and felt awful for 2 weeks after, so was hit with some heavy antibiotics. However, even though the Cyst was drained, I still feel bloated, uncomfortable, tired, and my back is a constant struggle, I sleep with a hot water bottle and am taking codeine, narproxen, am not sleeping and I still dont feel good?

Ive since then had an on line consultation, and then next week am going to see the consultant, she has suggested the remaining cysts and my ovaries will be removed, that I need to lose weight to avoid open surgery and to have a laparoscopy, am told due to covid it could be a years wait. I have been booked for a scan in June, which will be 6 months after the drainage to monitor for growth of them as am told he will refill? I have it in my head that I want an MRI to rule out anything else as I still dont feel right, and the fact that I have iritis yet again suggests something is going on? My bloods came back ok but are they always right? I am currently working reduced hours to try and keep me working and be normal when the reality is I feel am falling apart. My husband is encouraging me to exercise and I understand that, but at the same time I have v little energy or resource in me.

I will ask about the MRI next weeek. I just feel that I kept saying there's something wrong, I was being told I was fine but I knew I wasnt, and I was right. I still feel that there is more to come, am not being dramatic but im the only one that knows how my body feels, and as a 49 year old woman its should be like it is!

Thanks for reading, ive never shared on a forum before so no idea what am doing, and or if ive posted on the right place???

I just feel so drained from feeling rubbish all the time :(