Smear results letter very vague

Hello,

I had my first smear at the end of September and am kicking myself for putting it off for so long. In November I got a letter which said I have high risk hpv and that they have seen "changes" in the cells. That was all. Anyone I know who has had that sort of letter has been told what grade of abnormal cells they have but mine was so vague that it's making me really worried. I spoke to the nurse who did my smear (she very kindly called to check on me when she saw my results had come in) and she seemed to think just "changes" means that I had borderline changes or just some inflammation in my cervix but of course I'm still panicking. I haven't had an appointment yet for my colposcopy and they told me there's a backlog but couldn't tell me how long it would be. 
I haven't had any bleeding or unusual discharge however in the past few days I've had lower back pain and some VERY slight twinges in my pelvic area. I'm trying to tell myself the pain is probably due to working from home without a desk so hunched over my laptop on my bed, and from carrying my 1 year old around. I don't know if it's worth mentioning but I had 1 instance of spotting while pregnant and when I was examined they said something about cervical erosion? Also I had light bleeding instantly during the smear. 
just hoping for some advice really.... has anyone else had a letter that only said changes but gave no details? I'm so stressed and I don't know what to think. TIA x

  • Hi Clogs and welcome to the forum.

    I'm sorry to read that your results letter was a tad vague but I hope this information we have about screening results can help clear things up. 

    Hopefully some of our members who have had similar results will get back to you soon but our cancer nurses will be available next week if you'd like to discuss this with them as well. Their phone number is 0808 800 4040 and the lines will be open Modnay - Friday between 9a.m - 5p.m.

    I know you may have to wait a little while for your colposcopy but if you'd like to find out more about this procedure just click here.

    Kind regards,

    Steph, Cancer Chat Moderator