Has anyone had similar symptoms?

I have been having some issues with my tongue since the start of the year. It started of quite painful down the left side of my tongue, I visited the doctor followed by the dentist who said nothing was wrong(apart from gingivitis). I went away and my symptoms started to fade away but were still there. I have since been to the dentist twice and my GP who have no concerns about my tongue as I was worried I may have tongue cancer. What I'm more worried about is I still have these odd sensations down the left side of my tongue, like a dry feeling but on on the side, sometimes a tingly feeling. This is nowhere near as bad as it was when it all first started, I wake up most mornings it isn't there but by the evening it's stronger than the whole day. The doctor basically told me to live with it! What on earth could it be? I'm getting frustrated and I feel like I can't go back to the dentist or doctor as they are just going to think I'm crazy! When I saw my dentist last week she was adamant nothing was wrong and she saw no signs of cancer. I felt good but I think my anxiety is playing up again and I can't shift the bad feeling there's something wrong. Sorry for the long post I just don't know what else to do! X

  • Thanks so much for replying

    I was at dentist 6 weeks ago for a check up , this has only started happening since about Monday or Tuesday so hasn't said do dentist at time - I have an appointment In 2 weeks which is the earliest I could get - I did a photo to a dentist I know and she said it looks like friction, I know I clamp down on the back of my tongue . I also have neck lymph node issues so my health anxiety links it all together and comes up with the worst which is difficult but today I feel like fighting back a bit at the health anxiety as it's exhausting and sometimes lies to you . 
     

    thanks for replying and glad yours has gone :) xxxx

  • Hello just read this and I have the exactly the same feeling! Back left of my throat feels like toungue side. Going to the ENT Monday 3 months in the making and everyone brushing me off feel like a paranoid mess. All started off when I was yawning a pain in the left side then led to this feeling like something is stuck there but I am noticing that different foods are making it come and go a lot worst. Drank water all day today and felt so much better. Just want the ENT appointment over and done with :) hope you are all doing ok x

  • Hi all, these stories are my symptoms exactly. 

    Started in March 21 with a very dry throat and white coated tongue. Back and forwards to the Docs numerous times, seem not concerned. Tried thrush meds to no affect. Extremely anxious and have an appointment with ENT next week. This is taking over and ruining my life. M56. 

  • Hi everyone, 

    dod anyone get anywhere with this? I've had the same sensation on the back left of my tongue for 4 months. Doctor wasn't concerned. I'm trying to just ignore it but I'm getting so worked up. I just want to curl up in a ball in my bed :( 

     

    I've suffered with health anxiety for almost 13 years and it is really getting on top of me, I try and be positive but it's like someone is saying it's cancer and your ignoring it! 
     

    im going out of my mind with worry and get myself in such a state even attempting to call for a doctors appointment. I just want this to stop :( 

  • Hi Mumma123

    I have been reading through your threads regarding your tongue issues from last year. I have exactly the same burning sensation down the left side of my tongue, sometimes I feel burning in my lower gums on that side and inside my left cheek as well. Some days are really bad, some days are not too bad. Chewing gum, eating I don't feel it at all and thankfully when I sleep at night its gone and when I wake up its not there but within an hour or two of waking it comes on. It is driving me mad. I have no lumps or lesions or anything in my mouth or throat. I have had a laryngoscopy through my nose, down my throat, ct scan of my neck with contrast dye, and a neck ultrasound. Nothing was found. I was told it could be acid reflux and to take omeprazole and eat an alkaline diet. I've been doing that for several weeks and NOTHING has helped. I am at my wits end and like you, my mind keeps going back to cancer. Have your issues resolved? or are you still dealing with it? Thanks for any insight you can give. Hope you are doing well.  

  • He everyone, sorry I haven't been on here for a while. How are you all now? 
     

    hello [@pghshm]‍ slrry to hear you are having these symptoms with your tongue. It's good to hear that al of the tests you have had have come back clear. I would definitely try and take that as reassurance. I am definitely one for not being reassured until I have tests upon tests. With my tongue it wasn't until my dentist had enough of me and bought in a second dentist to give me a second opinion that my brain decideD to listen and believe what they were telling me. They didn't want to refer Me because there was no reason for them too. Believe it or not my symptoms drastically cleared. But, even being a year on I do occasionally get these symptoms on my tongue, but what gives me reassurance is that it goes for long periods before it comes back. Something sinister wouldn't do that it would stay and get worse, which is what happened at the start. I truly believe anxiety madE my symptoms worse back then. I have learnt to cope with it. I have recognised that drinking tea (which is not a regular occurrence) sets off the bizarre feeling on my tongue and sometimes I have noticed I scrape the side of my tongue on my teeth. Maybe that's an anxious thing I don't realise I'm doing until I have caused the odd feelings. Do you have the symptoms all the time or do they come and go? Maybe do what I have done and try and recognise or eliminate what might be causing it. Over the past 5 years I have suffered immensely with health anxiety, I still get bouts of being super anxious but I feel like even though I refused medication to help with those feelings I have kept my anxiety under huge control since my tongue issues were "resolved". Do you suffer with anxiety, try not to google, I remember people saying that to me and thinking they don't understand how hard it is to not google but I have learnt to control it. Sorry it was so long and I hope u are ok! 

  • Thank you so much for your response! You and I sound like we are wired the exact same. I have suffered with health anxiety and general anxiety for many years... basically give me something to worry about and I will! As I said I have had numerous tests and investigation done and so far nothing besides "reflux" has come up (except for the thyroid nodules and we have determined they are benign, not likely to be causing my symptoms, and recheck in one year) Being that these symptoms are persistent however, and reflux meds don't seem to be helping, I still need to find out what could be causing it. My mind says don't let something sinister go unmissed... and of course having friends recently receive cancer diagnoses and myself being a former smoker... all of this is not helping. I do notice when I am busy doing things, especially engagin or interacting with other people it is not as noticible or more tolerable if that makes any sense... I am not opposed to believing its quite possible it stems from my anxiety, and in fact I truly HOPE that is the case... but I just feel like I need more reassurance with investigations.. it seems like all the doctors have been so focused on those thyroid nodules that they havent really considered other causes too much. I have an ENT appt booked June 2nd. which seems a long time away so I am going to try to get in to my dentist sooner if they can see me and hopefully he can do a thorough exam. I am so glad to hear your symptoms have subsided and I 100% agree with you and have even been told by doctors before that cancer symptoms do not "come and go" and will get your attention even if you are trying your hardest to "ignore" them! I am reassured by that as well. Sorry for the long reply, I am truly grateful for your response! 

  • Honestly you wouldn't believe how many of us out there are wired the same. I started a new job back in august, in a cafe so not many of us work there around about 8 of us, and about 5 of them all suffer with some form of anxiety (mainly health) I was amazed because sometimes you feel alone out there becuase those around you that love you don't suffer and don't understand how you feel. At one point I felt like I was pushing my husband away, my family were frustrated with me and my eldest (9) was starting to act out like I was, being worried about health etc. it really hit me and I think that's also helped how Iv managed my anxiety. Definitely staying off google has helped. Although I may have the odd time I do it I am not sitting on it every waking moment. Lots of people have said to me in the past... on here, it's not sinister until proven. It's really good they haven't found anything, but honestly see you dentist, they are highly trained in any abnormalities that are inside your mouth. Go to your ent appointment too. But if everything comes back clear you have to try and move on from it. I have learnt to live with this, **** knows what it is I have never had a diagnosis. I was told once I could be grinding my teeth in the night which obviously affects the tongue, and low and behold my husband told me after that he wakes up all the time and hears me grind my teeth. So that could be the problem too. There's so many realistic possibilities than worst case scenario. (Arc at me giving this advice, I can't even take it lol). Don't apologise for the long post, i send them too haha. :) x

  • I definately know i need to stay off google and I do feel better when i manage to. The pattern is with me I notice the symptom and then i worry about it, then I google, then the symptom gets worse, then I worry some more, then something else in life will get my attention, then I focus on that, then I notice my symptoms have subsided, then I quit worrying, then it comes back, and starts the vicious cycle all over again! It's a horrible and unhealthy way to live! I will follow up in a few weeks to let you know how I am getting on or get any answers...in case it will be helpful to anyone else! You are right, there are so many of us! I think the stress of covid, and the last couple years have really taken a toll on people mentally and physically.  I used to never really have any problems physically and over the last couple years feel like Im falling apart, lol... but Im pushing 50 this year so thats probably got alot to do with it too! Take care!

  • Oh one other thing I forgot to ask... Was your tongue more sore or burning? Mine is not sore, just burning and tingling and only down the left side. I have read that it could be a nerve issue. But it's so strange how all my symptoms are all on the left side. My right side tongue, face, jaw, neck, throat.. all normal. Also, this all seemed to pop up out of nowhere. Just woke up one morning in January and had all these symptoms and been with me ever since!