I received my diagnosis of spinal chordoma at the end of November so I'm at the start of my journey. Can anyone share anything about their treatment and life after?
Not sure if you still use this site but I saw your post while searching for Chordomas. My dad has just been diagnosed with a skull base chordoma by the pituitary gland. He's having surgery to remove the bulk of it and then proton beam therapy in Manchester to take care of the rest. How are you finding treatment?
Not sure if you still use this site but I saw your post while searching for Chordomas. My dad has just been diagnosed with a skull base chordoma by the pituitary gland. He's having surgery to remove the bulk of it and then proton beam therapy in Manchester to take care of the rest. How are you finding treatment?
