I received my diagnosis of spinal chordoma at the end of November so I'm at the start of my journey. Can anyone share anything about their treatment and life after?
Welcome to Cancer Chat Amy although I'm sorry about your diagnosis.
Unfortunately, I can't find seem to find anyone with the same diagnosis on the forum at the moment but we do have some information about chordomas just here. I hope this helps but you may be able to find others with spinal chordoma via the charity Chordoma UK. To find out more just click here.
Our cancer nurses are also on hand to answer any questions you have on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
Not sure if you still use this site but I saw your post while searching for Chordomas. My dad has just been diagnosed with a skull base chordoma by the pituitary gland. He's having surgery to remove the bulk of it and then proton beam therapy in Manchester to take care of the rest. How are you finding treatment?
