I have just been diagnosed with extra mammary pagets disease and in a real panic about it.

I visited my doctor in August 2020 about a small (2cm size) strange patch of skin on vulva, she wasnt at all concerned by it but sent me to a dermatologist for second opinion. I then had a biopsy and had news this week that it was EMPD. I was totally shocked as i had never heard of this and after googling it find its extremley rare.

Ive been told its pre cancerous so assume thats good news but what terrifies me is she said that although unlikely there could  be internal malignacys. She also said it would have to be removed. 

Im hoping it will all be ok as i dont think its been there that long but any reassurance or advice would be most welcome.