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Hodgkin Lymphoma

Rebecca02
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Hi there this is all completely new to me I feel like I've just had my entire world pulled from underneath me. I'm female, 28 years old, married with 2 daughters. I was referred by my GP after noticing a large lump above my collarbone back in mid November. I've been completely well in myself besides this dull achey pain which I assumed was muscular but got it checked anyway. The GP said possible cyst but referred me and I went for an ultrasound. He then explained I would need a fine needle biopsy so they could do further testing. On my notes it says ' the ultrasound demonstrated a cluster of pathological lymph nodes, fine needle aspirate which is suggestive of a hodgkin lymphoma no B symptoms. I went to my clinic appointment accompanied with my husband where the doctor and nurse went into a little more detail but didn't overwhelm us as they still need to do further testing. I am.booked in on the 5th of jan for a second biopsy which they call a core biopsy and I'm still waiting for a date for my PET scan. On the 12th of jan I'm back at clinic with my doctor and nurse to hopefully review the results with a diagnosis and see what stage / grade it is and put my treatment plan in place. 

I am just wondering if there's anyone in a similar boat? I don't really know what reply I'm after other than I'm not on my own? 

Thank you for reading 

 

 

  • Hi Rebecca02,

    Welcome to Cancer Chat. Firstly I'm sorry to read of what you're going through at the moment and I can imagine this must be difficult and unsettling.

    Hopefully before long you'll have all the information and a good understanding of the situation and any next steps.

    I'm sure there will be others here who have been through something similar and so hopefully you'll receive further replies soon. It may also be helpful to browse or search (using the button in the blue bar above) the forum for other relevant discussions, if you haven't already.

    Whatever happens we're always here for support on this forum if you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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    Hey Rebecca,

    Sorry to hear what you are going through. If you are feeling anything like I am at the moment I am sorry that someone else has to go through this.

    After a few (what I thought were unrelated) issues I was admitted to the hospital to have blood cultures and an Ultrasound-guided biopsy on a swollen lymph node just above my collar bone on my neck (Supraclavicular). 

    When I got the results back the Dr said that I had Classical Hodgkin Lymphoma. He didn't go into much detail other than to ask if I had any fever or night sweats and that I am now referred to a Lymphoma MDT meeting to decide what happens newxt.

    That was 7 days ago now and I have been living with anxiety ever since and its hell. I have managed to find some relief by doing stuff to take my mind of things but that only helps in parts. I have found myself in bed a lot, I won't say sleeping because its never unbroken sleep as my mind is all over the place. I have also lost my appetite massively, just the thought of a big meal makes me feel bad... not sick, just uncomfortable. its weird it really is.

    Ill leave it at the for now, you are not alone in this and i am here if you want to talk. I know its weird talking to someone you don't know about this, but its something we have in common and i find it easier to speak to someone i don't know that i do my wife and family sometimes.

    Wishing you all the best

    Sean

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