Cancer Research UK main site
  • Replies 2 replies
  • Views 159 views
  • Users 0 members are here

Optic nerve glioma

Sharena2001
Offline

Hi 

My daughter has had a optic nerve glioma since a baby she is now 21 , I'm a little concerned as I think it maybe causing her issues  again( medical team is involved) but I can't find much info  on optic nerve glioma in adults  apart from they can behave much more aggressively. 

Any info would be great .

Many thanks 

  • Hi Sharena2001,

    Welcome to Cancer Chat. To be honest it would be best to discuss this with her medical team if you can, as they will be best placed to advise and specifically to her.

    If you would like to talk anything through with our nurses, then you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Offline

    Hi, my partner is 36 and has been diagnosed with optic nerve glioma. I'm really struggling to find the info I need. She has been recommended radiotherapy after a sharp deterioration. Have you found any info?

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.