Caring for my mum

Hi, my mum is only 56 and I'm 28. We were told she had vertigo back in May, calling the doctors at least once a week to say the meds weren't working, because of covid there was no face to face appointments. It wasn't until October (my mum was referred for a CT scan but cancelled due to covid) when I noticed her eyes were wobbling I demanded a home visit and she was admitted to hospital. From the scan she was rushed in for brain surgery, 19 hours! She only had 3 weeks to live without that surgery, but now we have been told she has small cell lung cancer which is not curable and spread to other parts of the body other than the brain, dispite the brain operation we've been told it's a matter of weeks. She's currently living with me. It's been hard coming to terms with all this for her which is understandable and I don't believe she's fully accepted it, the neurologist said she would have chemo before the brain surgery which she's held onto, since the results that isn't an option. she's so strong and independent and still putting on a brave face. Doesn't like to talk about things and will change the conversation. I've got upset once in front of her and she didn't like it so I'm trying my hardest to stay strong. She has started to speak to her friends about the last few weeks which I'm glad of as I don't want her to go into her final stages not accepting things or having questions. She is on medication to help control the symptoms (codine and steroids) but since the brain op shes extremely weak, pretty much bed bound (able to use a commode) the brain tumour was on her brain stem so her speech, balance, personality has been affected. Her speech has come back stronger and her eyes have stopped shaking, but her mouth is giving her a lot of pain, trouble swallowing sometimes, covered in ulcers and sores and up her nose, she's complaining her teeth are wobbly and it hurts to eat hard food, with lumps in the neck. She has started to have nose bleeds as well. We were told the cancer was in the lymps to so could this be because of that? Every now and again her chest will make a loud weazing sound, her breathing has changed and she is coughing up mucus pretty much constant. She isn't sleeping much at all through the night, will sleep more in the day but still has a big appetite which is good. She's weaker getting onto her commode, she has fell and sometimes not able to make the commode in time. She's urinating at least twice a hour, day and night but no meds seem to be working. Despite all this when the nurses/doctors call she says she feels absolutely fine and in no pain. She is acting different in front of everybody but myself, I just don't want her to be in any pain or discomfort, does this sound like the last stages? Is it possible for a cancer patient to pass quite peacefully? No shringe drive, morphine etc? Has anybody else been through this? What can I expect or how can I help as much as I can, thanks. 

  • Hi Sophrach,

    Welcome to Cancer Chat. I'm so sorry to read what your mum and all of you are going through and I can only imagine how incredibly difficult this must be.

    It is good to hear that your mum is able to speak to her friends about this although I can understand this must be tough if it feels as though she is acting differently with others to yourself.

    With regards to your questions, these are really best discussed with your mum's doctor/specialist, as they are the only one who will be able to advise specifically to her. Try to have these conversations if you can as it will hopefully provide an idea of what to expect.

    It may also help to talk things through with one of our nurses. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    I know there will be others on this forum who have been through, or are going through, something similar - so hopefully you will receive further replies soon. If not, do feel free to browse or search (using the button in the blue bar above) the forum for other relevant discussions. This is a very supportive and understanding community of people and I hope it provides some support for you.

    Do take care of yourself among all of this too - take some time where you can to speak to others, including us on here, and to get any support you feel you may need. The organisation Macmillan may be able to offer additional resources and support too.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator