Hi Sue,

It’s really great to hear from you and that Martin is doing well. Lovely you’ve been away on holidays too. Fingers crossed Kev is doing well too. I too hope Redski and anyone else is chugging along.

keeping the faith

Milly

Hi, I’m replying to myself as it’s been quiet  on here and I get that as I  don’t post much now. It’s 4 years since my husband had his Oesophagectomy and it was a rollercoaster as he had several complications which I won’t go into as they are documented on this thread. . However he is well and is currently doong maintenance on his fish pond!

Along the way I connected with fellow travellers both patients and their loved ones. I am aware that not everyone is still with us on this earth but are always in the hearts and minds of their loved ones and I wanted to say I don’t forget them either. These comrades helped me as Hilts called us ‘the onlookers’ and I will never forget their bravery and determination against this awful disease.  

For those who read this and are either starting or continuing on this path I send my heartfelt best wishes too.

still keeping the faith 

Milly

Hey Millie - we are still here too- the rollercoaster ride we and many others all shared. This board was our little saviour at the time, finding fellow travellers . Helped me more than I ever thought it could. Some of our fellow travellers didn’t make it all the way and that was and still is upsetting and they will always be in my thoughts. So for all of you starting out on this incredible riollercoaster- keep the faith ️

Hi Hilts so lovely to hear from you , as always. Glad you are both chugging along.

yes still keeping the faith

Milly

Hi is anybody still on this thread? I'm kinda new to this club and just about to start my 1st cycle of FLOT before surgery. Still so many unknowns including how much stomach I'll have left (if any). Won't know 'Until we get in there, and you might have an osopharectomy too'' is, though understandable, not the most comforting quote I've ever heard. Anyway just thought I'd say HI if anyone is still around!?

Hi Shayde, I still get updates when people post as do others so still active.Sorry to read your diagnosis but get the chemo and surgery done and hope it goes well. I’m nearly 3 years post chemo with FLOT and then surgery then more chemo. I found the cumulative effects challenging second time round but got through it. Take it steady I found round one felt ok day 2-3  round 2 about day 3-4 and so on. Made sure I got out and about as much as possible when felt ok in between ie pre-habilitation get as fit as you can for surgery as it’s a big op! Eat as much as you can and try and gain weight you will lose it post surgery and recovery I ate ginger biscuits as helps nausea and get a soft toothbrush and used difflam oral rinse also. Good luck and if not sure ask here