Hi Milly, thank you for sharing the good and encouraging news on that awesome milestone !

Andi, congrats on 7 months post op too ! Great to hear you're continuing to improve and thrilled for you that you're off on a jolly !

Hi Milly,

Great to hear the milestone...may there be many more.

Lee

Yes he's on chemo . It's a new one now , to help it shrink 

fingers crossed  

Take Care . 

Hey Lee,

Thank you. How are you doing? Still think of you and hope you are finding your way. As I think I've said before my mum died of breast cancer aged 51 - I was 24 - a huge shock. I still miss her and feel cheated. However my mum said 'don't get bitter as bitterness affects you and no one else'. Your relationship with your dad was so special it's a huge loss. Take your time - it's early days. 
 

Big hugs and still keeping the faith for all of  us in our lives

Milly

Thanks Milly - therectge same words my Dad said many times. Unfortunately we don't have any control on whether the good ones go or not.

Taking one day at a time and trying to keep ourselves occupied as much as possible.

I had to go to an office to collect paperwork yesterday and it was opposite the hospital- those memories came flooding back-2 years of in and out of hospital for appointments, treatment, scans, chemo...

It's a place I don't want to visit for a long, long time.

Lee

Hey y'all, 

wow, what a little flurry xx and a newbie x

LEE- great to see you pop in xx. I too have been thinking about you and hoping you'd pop in. Little steps I guess with lots of tissues and amazing memories. Probably way to raw at the minute to even smile at memories, but at some point you'll find yourself smiling instead of balling when thinking about him. Little steps xx

MILLIE - yay- 1 year since the full monty...... with extra's- clapping emoji's x . I know how much you must be smiling. Looking at your guy and thinking what they have been through. That is why the Orange County trip was so important to me. To see my lovely Wally on those vomiting coasters and swimming in the water parks AFTER all his body has been through! ANDI - note it is possible. 17 months post original op for us.  We've just booked another....... don't ask. Relaxing (hopefully)one on a Greek island this time- I guess we are making the most of what we've got and there is nothing quite like OC to focus your mind on what is really important.

Alos, some time ago on here we were all talking about travel insurance. To go to America we used SAGA , 'only' cost us 450 for all of us. I was shocked, thought it would be far far more than that given where we were going and what we were doing! and what he has had done!

Millie - first sutton on sea, Orange County , now the isle of white! We love it. Ventnor in particular. That is the holiday we went on the week of diagnosis!

Rusty- keep that faith. Welcome to the club no one wants to be in, but hey, here we are. Sounds like your partner is in the early stages of treatment. Like Millie's husband mine also has FLOT pretty nuclear stuff, but good at what it does. My husbands swallow was pretty grim when he started, but after the 2 nd pain and gagging was much reduce and he was able to eat again, gagging for other reasons! by the 4 th it was like nothing was going on. 'Incurable' sounds pretty full on BUT there are several 'incurables' around on here- one who unbelievably was 'incurable', but is currently disease free!!!! and another who is 10 years into his incurable /palliative diagnosis/ treatment . 

take care you all and keep keeping the faith

Hilts xx

Hello  

Yes, Millie he did take FLOT, the first time around for 13 weeks . There was a difference as he was eating, we were going out for meals. But then he unfortunately started to feel blocked again. So we contaced his oncologist and she suggest the stent. He's had lots of pain since having it fitted, because as the tumours growing it's pressing against it causing him to feel pressure in the chest. He described this as like being suffocated. 
it's been awful for him . And I've felt helpless seeing him in pain. 
He is going to be taking his 2 nd chemo (camto) on Wednesday . 
I hope and pray it will start to shrink it .
Thank you for listening xx 

Take care ️

Hi Rusty1,

Hopefully the chemo will shrink the tumour and improve his swallowing, eating and ease the pain. Presumably the hospital will review the stent? We are hear to listen and we are a supportive bunch . We all have different stories. Some are patients, others family members. Just remember everyone is unique and some on this forum who have defied the odds. I have a friend with Bowel cancer who was given 6 months and is still on treatment 5 years on.

I do realise that one word - incurable - is absolutely devastating but sometimes it can be controlled. I wondered if you had both been given the opportunity to have a holistic assessment by the Upper GI team. We had one and this led to emotionally support for me as well as Kev (who didn't think he'd need it but has used it). I must say the team were very supportive and I accessed a local palliative care nurse during the time between Kev's extra operations. 

keeping the faith for everyone 

Milly

Thank you for the advice xx 

will look into it .