osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Hi Lee

    Great news on the plan.  My op was about 8 hours and a couple of days on ICU, then out 9 days later.

    We did plan to visit southern spain (we can fly to Alicante without too much trouble from our local airport) in April last year with a view to doing a road trip to explore the area of to the east (around Denia and Javea) with a view of getting residency before brexit took hold.  Somebody then took one look at what we are going to do and decided to send a plague to stop us from travelling, 3 different tumours for my wife and then to top it all off, my little embuggerence in October. 

    So when we do go to Spain, it will be last minute and unplanned so expect a quick note on here asking for advice on where the best place is to get a cold one.......

    Hilts - hope all goes well with hubbies op.  My wife's last removal was a day job - but it still knocked the stuffing out of her for a good week afterwards.   Baby steps.  :-)

    Oh - and I hadn't realised. 

    Happy Anniversary everyone! 

    When Ray posted a couple of days back, that was exacly 1 year from his first post.

    cheers

    bfg

  • Hi Lee, 

    I can't remember if I responded to your previous post, but anyway.......excellent stuff regarding the op. They are looking at curative I presume if they proceed after biopsy??? So many different combos out there.

    As for the op itself- yep , I think the standard has been 8-10 hours on the slab! My husbands was 10 as it was keyhole, more 'fiddly' (: 2 or 3 days on ICU as I remember then chucked out day 8- but only because it was xmas eve, I think it would have been a tad longer as his chest drain was refusing to dry up!
    Most have had a tad of post op lung bother, but all sorted, for all I think.

    Your Dad will be nicely blotto for the whole lot, but for us watchers it was/is a strange old day.... for me, I found the best thing was distraction- I went to work, probably as useful as a chocolate fire guard, but distracted nonetheless (:

    All the 'victims' on here were hauled out of bed the next day(: I think, no respite, fluids , if all well the next day. Plenty of 'fluids' for you too (:

    Keep us up to speed and very very best wishes

    keep keeping the faith

    Hilts

  • Hi bfg, yes the Brexit effect has hit us all really hard here - I'm getting the feeling that some efforts will we made to easy residency requirements as many applicants have been refused.  We are based just near Alicante airport but been upto Javea, Albir Calpe many times. I'm sure we could find somewhere for a cold one - just let me know if you do make it over here.

    Lee

  • Hi RayB

    we wondered what had happened to you ? good to hear you are still with us , take it easy.

    Regards

    Douglas

  • Hi Hilts,

    There seems to be a thin line between 'curative' and 'palliative'. The surgeon and oncologist have said that there is a small chance of cutting out all the cancer but they seem to be leaning towards the operation giving more time. The surgeon said today that if the OP goes well then it could be 2/3 years before it returned and then we could attack it again with more chemotherapy. As much as this isn't 'a permanent solution ', it Is a much better outcome than we have been told for the last year (before surgery was a possibility).

    A few days of relaxing now before we get the date of surgery. 

    Lee

  • Hi Lee,

    Yes we had the same warning but not the biopsy. Standard 8-9 hour op. Hilt's husband is the only total keyhole surgery I've heard of. My husband was a hybrid, keyhole on abdomen and open at the back. As you know recovery was meteoric until the very unusual complications (never happened before unusual!) with the drain removal and everything that followed. However he recovered and has made a good recovery. Much longer stay in ICU, HDU etc BUT they sorted him. They are experts and yes whilst there are risks it doesn't mean it will happen and if it unfortunately does they know how to deal with what happens. The best thing to do I think is treat your dad as an individual no two people are the same. As Hilts says hard day for you all but keeping occupied is the best thing to do. My son took me out for a long walk and a pub lunch - felt surreal but helped enormously. We will all be routing for you, please let us know the date when you get it.
     

    keep the faith Lee and remember just how far your dad has come

    Milly

  • Thanks Milly...I'll remember the walk and lunch with my Mum on the day, good advice. 

    Lee

  • Hi Bfg

     

    What a coincidence! My wife Elaines, breast nurse mentioned that it`s quite common for cancer to happen in the same household. Stress/worry, makes you wonder. Definitley better letting the rest of your family know about your hitched status. Congratulations to you both

    Hi Milly

     

    Really pleased the CT scan was clear. Yes some sort of normality is definitley the key and making the best of what you have got.

     

    Hi SallyR

    I`m glad you and others are finding this forum, as they say its great to talk. It help me a great deal.

     

    Hi Hilts

    I have missed being on here. Cancer defintley seems to be on the up, me and the wife have just watched the Dark Waters on Netflix and it really makes you think. I wonder what your husbands take on it is, worth a watch ?Well I never knew about the Gallstone until after the op, but from conversations with the upper GI nurse and the consultant they thought I did. Hopefully it can be removed. Fingers craossed the husbands op goes without hitch. Oh yes Flu and Covid booster to look forward to Not LOL.

     

    Hi Lee

    Fingers crossed your dads operation goes to plan.

     

     

    Keeping the faith

     

     

     

     

  • hi Lee, 

    From just reading your post, sounds like the surgeons think that your Dad is a 'very good case', they seem really really realistic and positive. Sounds like what most of us have heard pre op "we'll  chop out all we can, but no guarantees "  we were told that, and if they couldn't get it all, they would blast the rest with chemo. I think what I can say for defo is that they wouldn't even be doing it unless they thought he was ' a good bet'. Most of us on here , I think, only knew they got the lot after the histology came back 4-6 weeks after the chop. Most of 'us' also had post op chemo , regardless of histology, just to finish of any little *** that we're still hanging around (: So millions of fingers x emojis 

    RayB- yes , you were VERY MUCH missed. Yep, get rid of the gallbladder if you can, honestly, after what you've been through it would be like pinching your finger !!! All keyhole, out same day.(: I would never have 'passed' mine naturally (closest thing to child birth apparently! ) too big! . I'll mention programme to husband. We are watching one of the most childish, hilarious, inappropriate' drama's on Netflix at the mo. A 'spoof mocumentary' American Vandal. I've had a abdo pain after laughing so much!

    Anyhows 

    keep keeping the faith

    Hilts

  • Thanks Hilts, nice to hear encouraging support. We have some family arriving from the UK tomorrow (first time since start of covid) so it'll be a nice few days catching up and trying to explain the emotional rollercoaster we've been on...and are still riding!

    Thanks 

    Lee