osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi Rayb

    just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

    It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

  • do you know what a plo is in an operation? 

    would be grateful if you have any idea

     

    sorry to hear about your diagnosis x

  • Thanks Milly,  very kind words. We are away in benidorm for a day and night (all 4 of us) trying to relax before the big day.

    Again thanks for the encouragement. 

    Lee

  • Great news that you've got the Big Day booked in Lee.

    Hope you guys are having a great time in Benidorm !

  • Hi Redski, 

    Yes nice to take your minds off things for a day- we live 45 mins away from Benidorm so often drive up for the day. If you or anyone else on this rollercoaster journey is ever end up on the Costa Blanca,  please message me and we can meet for a coffee or a cold beer:happy:

    Lee 

  • Sounds good Lee, thank you !

  • Hi Lee,

    Thanks Lee - cold beer - lovely, We went away the week before my husbands op as it had just opened up here to be able to go self catering. So glad we did! Hope the appointment with the surgeon goes well on Wednesday and the date for the operation is pretty quick. 

    Yesterday my husband went to see his team, managed Wayne Rooney - so lots going on, for the first time since March 2020! Lifelong fan and a big milestone for him. 

    Enjoy your break away.

    Keeping the faith

    Milly

     


     


     

  • Hi Hilts,

    Apologies for asking again lol! Just to be clear did T (ui) £200 extra premium cover the OC? We are looking at a holiday to Tenerife - same company. As I said we do have insurance so both covered for everything apart from OC. 
     

    keeping the faith 

    Milly

  • Hello everyone.

     

    This thread is turning into a huge fountain of experience/advice for everyone, as I have said before its great to be able to share feelings/worries and just be able to see you’re not the only one on this OC boat of ours it`s a bumpy rollercoaster ride for most but this place has been a great help.

     

    I have been missing in action since the end of July, just trying to get on an even keel and move on with our family life.

     

    A lot has happened since I last posted, we have half dismantled and rebuilt our conservatory to install a hot tub, bit of a mission to say the least, but as ive been told we bloody deserve it lol.

     

    Regarding my heath I have been managing to eat my normal diet but in smaller amounts, but I can tell when my NEW stomach tells me I have reached my limit. Only one thing worrying me since my treatment around a month post op was a pain in my right upper rib cage and after a recent CT scan I have Gallstones lovely...NOT! Surgery may not happen because of the surgery already performed, could be too dangerous. Will update you all in the New Year when I have my next check up.

     

    After 6 months of recouperating at home I decided it was time to go back to work, although on light duties. Time to get on with life or so I thought, only to be hit with another huge blow this time it was my rock, the wife. She has been diagnosed with breast cancer, caught early thank god and has just undergone a lumpectomy hopefully they have it all and no future operations needed. So still dealing with the big C.

     

    Hopefully more people will come across this site and join the OC ride with us.

     

    Keeping it real.

    Ray

  • Offline in reply to RayB

    Hi Ray

    Great to hear from you again, the RayB forum has missed you.

    I know that you and I were fairly close timing wise on our respective ops and follow up flot cycles, but my wife had a lumpectomy for a breast tumour too a couple of weeks ago. She has been told that should be it and they don't want to see her for another year.  But how spooky is that?

    I have no gallstones though :-), but do share the diet routine and  am acutely aware of what happens if you don't listen to your new stomach. 

    You will love the new hottub , it's proven to be very therapeutic.

    Oh - and we finally told my family that we finally got hitched over a year ago.

    Keeping the faith real!

    Cheers

    Bfg

  • Hi Ray!

    So good to hear from you as we've all missed you! Good the hear that you are generally doing well and I hope your gallstones settle down and they can sort you. Sorry to hear about your wife, good job it's been caught early. It's just not right!! What a coincidence with Bfg.  You are all so strong. 
    As you will know from the thread my husbands Rollercoaster got even more twisting but he recently had the good news that CT scan was clear and everything seems as good as it can be so everything crossed.

    I understand why you needed to 'get some normality back' but thank you so much for posting as we've all been concerned for you and missed you. 

    keeping the faith despite some serious reality

    Milly 

     

     

  • RayB, that's so great to hear from you, yes the thread you started has been so helpful.   I'm so sorry to hear your wife is going through cancer as well as [@bfg]‍ 's wife.   After all you've been through news like that hits like a ton of bricks.

    The hot tub in the conservatory sounds lovely!   That's one thing you have I'm jealous about!
    thanks for writing and updating us.

    Sally

Reply
  • RayB, that's so great to hear from you, yes the thread you started has been so helpful.   I'm so sorry to hear your wife is going through cancer as well as [@bfg]‍ 's wife.   After all you've been through news like that hits like a ton of bricks.

    The hot tub in the conservatory sounds lovely!   That's one thing you have I'm jealous about!
    thanks for writing and updating us.

    Sally

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