Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

Hi

Hilts

yes I did find out pretty quick that google is not a friend in this scenario.  You be dead before your first scan if you took any notice of it.  My Husband is T2, N2,  M0.  Never really heard much about this type of cancer and brill he was diagnosed. Can't believe how many people actually have it and the age of people, 

Its a harsh world 

tracy

Hi y'all

Tracy & Lizzie- night owls ;worry or box sets?? (:

Big hand clapping emojis for you both NO M's and as for N2 , well they will soon be smashed into oblivion (: 

So no spread for either of you. The vast majority on here are the same.

Being as common as the rest of us, the treatment plans will probably be similar FLOT chemo x4 , surgery, FLOT chemox4 .

Ours moved incredibly fast. From THAT endoscopy to starting chemo= 5 weeks and in that time all the scans etc and we went on holiday! What else do you do eh (:

Lizzie- it is really strange, but as I said, once you get the verdict in and know where you are going with treatment, I kinda gets a bit 'better' - the plan is some kind of route map. I don't know why it makes it better- but for me it did. The new cap will certainly come in handy! The hair will go, I was seriously in envy of husbands legs!! But it will come back before you know it. 
Tracy- yep, I thought we were rare breeds at diagnosis, but clearly we are as common as muck(: there are LOADS of us all similar ages and that is just on here. When husband had his chemo and op, he travelled through treatment with 4 other blokes, husband being the oldest at 56 !!!. They spent hours comparing and contrasting side effects, war wounds etc. They are still in touch now! Your staging is not terrible news, of course you'd rather not be in this position, BUT , that staging is actually quite good. It is amazing how bad news can also be good- if that makes sense ?

Both - You will have billions of questions- ask away, we are all on here 'experts in the lived experience' (: Read through our past posts to capture the 'highlights' of the last year or so.

Keep the faith

Hilts 

Hi y'all, 

Well the verdict is in . CT Scan on Wednesday. Call from MDT nurses. Scan been 1 reported, but needs another. NO SIGN of any reoccurrence. Nothing dodgy yaaay.

However ( always one eh) he has something called aspiration.  We kinda knew that was going on, but surgeon ringing on Monday to discuss what to do. It will involve a barium swallow to see what is going where, then plans going forward.  So good.

Anyone out there had this? I might post on a new board.

Anyhows  off now

keep the faith y 'all

Hilts 

Great news it's nothing dodgy Hilts !

Wish him well from us and enjoy the weekend now !!

Hey Hilts that sounds great news it's nothing dodgy!!   What a relief.   The aspiration thing sounds hopeful there is a solution for it at least a plan to do something about it.   Did you mention that the hay fever tablets(?) seem to help?   SallyX 

Hi Hilts,

So pleased nothing 'dodgy' was found. As Sally said they can do something which is a relief.  Like you did back home and where do I go first? Here of course lol.

We had a great week in the Lakes. Scan this Wednesday and then appointment with Oncologist the following week. So everything crossed. 

keeping the faith

Milly

Hi Sally,
I was thinking of you and your husband on Wednesday. Hoping the eating is getting a bit better. My husband had a couple of 'crashes' last week but not full blown sweating etc but 'the runs' not a normal topic of conversation which is why this group is so good!

keeping the faith

Milly

Hi Tracy and Lizzy,

Welcome to the club no one wants to be in! However this group have helped me so much during a really difficult year. You may have read my posts but in brief my husband was diagnosed at the end of last October 2020. Active and healthy 62 year old. Problem with swallowing then bam I'm sitting in the dark in a car park whilst he has endoscopy and get a phone call to go on. Shock news given by specialist  nurse. Lots of scans, tests and this took longer than most on here. If you want to read our journey it's on my previous posts but he did have unusual complications which was very traumatic. However he has now had his last FLOT x 4. We have been away with family which has been wonderful. As you will see my husband has a routine scan on Wednesday he was T3 N1? MO But after op T2 N0 M0. actual op couldn't have gone better.
After scan we have meeting with Oncologist next week so we've got everything crossed.

I too googled it to the point of exhaustion and it's just such a scary cancer - not than any cancer isn't scary but it is aggressive but as you will see on here people do live with it and some have done for a long time. Others have had surgery and are doing well. It is a difficult road but knowing others are alongside you is a huge help. My husband has a mentor who was a friend of a friend. He was 49 year old policeman when diagnosed in October 2018. He was told he would never be able to do his job again. But he was back 6 months after the op (no chemo after surgery  radio/chemo beforehand) and back doing shifts after 9 months. He's just climbed 3 Yorkshire peaks for cancer. 
 

There is hope.

So keeping the faith, as always Hilts, for everyone 

Milly
 

Still in ICU - on life support - got pneumonia - fingers crossed I make it

Good luck Andi, stay strong,  thinking about you. 

Lee

Good luck Andi, stay strong,  thinking about you. 

Lee