osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

Parents
  • Hi Rayb

    just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

    It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

  • do you know what a plo is in an operation? 

    would be grateful if you have any idea

     

    sorry to hear about your diagnosis x

  • Yes - all done. Remarkably pain free. Have horrid cough and lung refuses to inflate. Still in ICU xx

  • Glad to hear you're pain free at least. How annoying about the lung though! Have they given you any timescales on how long you could be in ICU for? Xx

  • Hi Andi,

    I've been thinking of you so it's good to hear that you've had the op. Everyone is different but I'm sure they will sort you out. My husband had a longer stay in ICU as you know and had lung problems after his second op but he's doing well now. ICU  staff are highly trained.

    Keeping  the faith

    Milly

  • Oooo whoop whoop Andi yaaaay 

    Huge bunch of hand clapping emojis .

    You're DONE.

    congrats.

    Yep, post op is 'interesting' . Opiates help an awful lot (:. Lung will reinflate- the hospital will give them no choice (: Honestly, though the care is soooooo darn good, any blips will soon be put in their place.

    So - 2 days post op?  They'll have you up soon (:, then sips of water etc. Small steps every day (:

    Husband was there on ICU for 2 days I think. Chucked out on day 8 ish.

    I bet you can't belive you're all done, slept through the lot(:

    Take care and keep posting

    keep the faith

    Hilts.

  • Well done Andi!   Thanks for letting us know!   Hope everything carries on getting better, and your lung starts behaving itself soon.   You are in the best place for the best care.   Thinking of you

    SallyX

  • Hi Andi

    Welcome back. My lung was a bit on the slow side to inflate - and that cough should start to sort itself out when you are up and around on your feet (although I did feel like the weight of the world on my shoulders at the time).  The one perk for me shuffling around on my feet was that I didn't bang my head when I walked through a door.  Minor story - on a contract a few years ago at SSE during my welcome meeting, there was a consultation at the time when it came to health and safety whether I should wear a hard hat when I was in the office.  I managed to persuade them that I was used to ducking.

    Hope you are having a better day - it will be "baby steps".  :-)

    cheers

    bfg

  • Really bad day - took epidural out - had been in a lot of discomfort over night which changed to pain in n the morning. Sorted now. 2 drains out as well - one to go!!  Think I'll be in ICU for just over a week - 7 th day tomorrow. Recovery now. My gorgeous granddaughter gave birth to my first great granddaughter today - Emmie 6 lbs - can't wait for a cuddle.  

    thank you all for all your thoughts and help. 
     

    Andi xx

  • Congratulations Andi! A great Grandmother! It won't be long before cuddles are in abundance.  :-)

    Great news on the drains as well. It was a huge relief getting them out. 

    Keep clicking the button!

    Cheers

    Bfg 

  • Hi Andi,

    Congratulations on the birth of your great granddaughter! Sorry you've had a bad day but pleased to hear that your pain has been sorted AND you've had two drains out! Progress. As everyone says small steps but steps forward.

    Have you been allowed any visitors? Not sure what the policy is now.

    keep going and keeping the faith,

    Milly

     

  • Sadly no visitors yet - still on ICU.  Xxxo

Reply Children
No Data