Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

Oh no!!! Tabnabs that's awful, I'm so sorry!!! 

How are you feeling physically? Do you think you caught it while at treatment? 

Are you able to rebook France for a future date or is that not really a possibility?

Everything's okay over here. Still no movement on being able to swallow anything solid so got a telephone appointment with the Advanced nurse practitioner this afternoon to see if they can prescribe any high cal shakes or something similar so I don't Lose more weight while waiting for the biopsy results to come back. 

Also got Work moaning cos my seizures have been bad so I'm off on sick leave, but what can you do? Noticed a job on a band higher than mine has come up in my old department so I might just go for it. I miss working on Outpatients and actually having patient contact x

We'll be thinking of you Andi. You've got this!!! X

HI Leo25daisy

Thats promising news , if it's almost definitely not cancerous  , by the sound of what you have been told  i hope they find a good solution to your problem , keep us posted as it's important to make others aware of all the possible conditions which can affect the 0esophagus otherwise it sounds very  positive that you can get this condition under control , well done and take care.

regards

Douglas

Oh no Tabnabs - not surprised you feel like you do (angry face to support you! ) Hope you don't feel too unwell and you are soon Covid Free - wish it would just do one! Hope you can re book your trip - most companies seem flexible re COVID. 

sending healing hugs and a big boot to kick Covid into touch!

keeping the faith

Milly
 

Hi Andi,

I had it in my head that your op was on Monday - so I've been thinking of you. Honestly the NHS staff are brilliant - I've had two hip replacements (which I know isn't the same) and I was a bit anxious. They will look after you. As I say the good thing is it's a whole professional team specialising in this area. 

keeping the faith

Milly

Hi Tabnabs,

It's not been your lucky week! My Dad had covid and pneumonia in February whilst in the middle of a chemotherapy cycle- he felt really weak for a couple of weeks but slowly improved -plenty of liquids is what the hospital kept saying and slowly but surely he made a good recovery.  Good luck and stay strong. 

Lee 

Hi Leo25Daisy,

Well I'm a shocked if work are giving you hassle, they should not be doing that at all! Good on you for thinking of moving but you shouldn't be penalised for being unwell. 
 

Regarding diet my husband was prescribed the compact fortisips which suited him better as it was a smaller amount. Milk is a good option and Sally on this chat suggested condensed soup as it contains more calories. Hopefully the Advanced Nurse Practitioner has helped.

Keeping the faith

Milly

Well the ANP said she was very surprised that Endoscopy took biopsies and did nothing more on on Sunday so has spoken with the GP. They've advised a full barrage of blood tests to be undertaken with a review with the GP once they come back. Earliest I can get a blood test in the community is on Monday, so will have to book to see the GP after that.

Don't you just love chasing around a diagnosis and trying to find it? I almost feel like if that's going to be works attitude then I may as well just go on long term sick leave. I've applied for two other roles one in my old department and one on reception and I've worked with both their team leaders before so hopefully one of them will come through.

With stress being a seizure trigger it's really important for me to be in a role where I feel supported, so at the moment gynaecology isn't really doing it for me. 

Guess I'll see what happens when I get in with GP. X

Yeah, not too bothered about France tbh, as you say easily rebooked. Physically feel as rough as guts, but taking full advantage of feet up with not feeling guilty.

it'll be interesting to hear what Nurse specialist will suggest, go for the other job too, they don't sound terribly sympathetic where you are! 
Andi, I'm sure like everyone else on here wishes you all the very best for tomorrow, I hope your bath was totally lush, plenty of bubbles, candles, rose petals the lot! Cos' you're worth it ;)

Tabnabs

Thanks Tabnabs - it was wonderful . Needless to say I am the only one on the list tomorrow - theatre at 8am!! In hospital now xx

Thanks Tabnabs - it was wonderful . Needless to say I am the only one on the list tomorrow - theatre at 8am!! In hospital now xx

God bless you for tomorrow, you'll be absolutely fine and can wake up out the other side of it and just focus on recovering from the op, and listen to the physio team - get up and walk about, even if it's just small steps as soon as possible, it really helps !

Dont worry about it ... you'll walk down chatting to the team putting you at ease and before you know you'll wake up out the other side of it.

Let us know how you get on !

Hi Redski 

Thank you - will do as I'm told - anything to recover quicker x