Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

So basically the cells that are misbehaving but not having a full blown rebellion? 

I am fried! Had myself a little nap after dinner (what little I could manage to eat anyway) but its one of them nights where I can't get warm no matter how many layers and blankets I've got on the sofa. Even caved and put the heating on! 

The other half has had the genius idea of soya yogurts though as I'm lactose intolerant and is hoping they might be more tolerable x

Oooo Leo, 

Soya yogurts !!! . Noooo. LOL. Sorry, I am a really traditional kind a gal with food. Full fat creamy yogurt for me any day. When my husband had trouble swallowing, he melted cheese in everything, large amounts of olive oil or butter on everything.i even came up with what I thought a snazzy idea. Rhoda's cream ( you know the stuff like butter) frozen, then dipped in anything you fancy - like melted chocolate- that is more like it (:

I went for a coffee in town today, with full fat milk of course : the woman in front of me ordered get this - decaf earl grey with soya milk.........I could have cried for her(:

Sorry, I know there are lots of people who like that sort of stuff and I shouldn't laugh, but after the last year I really am of the opinion, do what you like, when you like with whatever you like- ultimately makes little difference. The time that is given to us is most defo for living.

Your summary of Barrett's is pretty spot on- yes, they are attention seeking cells(:

take care

keep the faith

Hilts

Ooooh now that really is a snazzy idea!! 

Haha its only the lactose that ruins the full fat for me! I have odd days where I crave the proper stuff and I'll binge on ice cream or pizza but I pay bitterly for it the next day! Yet I can manage Cravendale with no problems so I have to have that at home. Have just made a nice hot chocolate for the evening.

Ooooh no!!! How can you have decaf, Earl Grey and soya? Who even puts milk of any description in Earl Grey? 

Haha they're the rebellious teenagers of cells x

I had a post op, benchmarking CT Scan today at 11:30am and saw my surgeon at 1:30pm to go through it and my histology results from the lab on what they removed in the op.

Thankful that the CT scan was clean and normal and histology back, all 72 lymph nodes he took came clean back too. He told me to go and celebrate with another Nandos, haha !

So, I'm now waiting to start post op chemo on 6th October which means all being well I should be done by 18th Nov.

Keeping walking forward, head down getting it done.

Hoping everyone else on their respective paths are keeping on, keeping on too and moving forwards.

Oh that's fantastic news!!! Definitely celebrate tonight x

Nice one redski...good news 

Hi Redski

That's fantastic news - enjoy your celebration. I have my 'op' next Wednesday - very scared but nearly there. Good luck with the chemo - all fixed by Christmas 

Andi x

Thank you all, really appreciate it and this thread has been a huge part of the journey and getting through it with all of you and your lovely positivity throughout.

Lee, good to hear from you and I hope your Dad is doing OK too.

Andi, please don't worry ... honestly, you'll be talking away to the anesthetist and before you know it, the next thing you're aware of is waking up in the Critical Care Unit the other side of it and be none the wiser about it.

You can do it !!

Thank you Redski - worried about my fitness level as had a broken humerus which stopped any exercise - so not very fit but surgeon/anaesthetist have decided to go ahead - watch this space

Andi x

Hi Redski

absolutey thrilled for you, well done you and your team awesome news

Tabnabs

x

Hi Redski

absolutey thrilled for you, well done you and your team awesome news

Tabnabs

x

Thank you TabNabs, hugely appreciated and massively proud of you walking through your journey too. Keep going, keep walking forwards, keep postive, you've already shown a change in direction is possible once, and so it's possible again ! Go get it !