That's great progress Milly.

3 weeks tomorrow and he'll be half way through!

I don't know how the body would react to a platinum medal Tabnabs - it'll be like supermans kryptonite.

Cheers

bfg

Hi all,

Thank you for your good wishes and words of encouragement. It's certainly been a long and winding road! Yes Tabnabs and Bfg platinum indeed! You are all superhero's!  Maybe we should have a superhero get together all dressed up like Rodney and Del lol.Im definitely the side kick!

Hopefully when this last hurdle is completed we can start to make some plans and my sat nav and phone won't keep telling me how many minutes it is to the hospital and what the traffics like lol.

Keeping the faith 

Milly aka Robin

We've just invested in one of those sat navs that not only gets you where you wanted to go to, but also reminds you why you wanted to go there in the first place. 

:-)

BFG

Bfg,

A funny story - Our first sat nav was stored in a draw under our bed. I wasn't keen on the sat nav and it was the early days of them. She annoyed me at times lol. We were in bed when we suddenly heard 'turn right now' - well we couldn't stop laughing- I said 'My goodness now she's even in bed with us!!! As my friend said at least she didn't say 'You have reached your final destination!  

keeping the faith and hoping to reach our final destination to better times. 

Milly

LOL

yes you all know how you react to platinum!! The O in then FLOT. oxiplat is pure platinum, so all you OC warriors are full of it ((((::: sorry I think I'm funny.

Who mentioned Sat Nav aaarrrrg

As y'all know husband treated himself to a new car recently our first with Sat Nav- lets just say we no longer have it.LOL. HE has disabled it, not with a hammer,which I would quite happily have helped with, just properly.

Drove us mad, that voice - oh god, it is stuff of sci fi\ AI nightmares (((;.

Take care and keep the faith

Hilts

Just my regular check-in. Thursday was my second chemo session (9 hours... ugh. Thankfully only have to do that every three weeks!) and my daily chemo tablet dose has been doubled as they found nothing odd or worrying in my blood work. 

Got myself a Nutribullet, got prescribed Aymes shakes and I think I'm finally getting into the swing of taking in nutrients despite having zero appetite ("only" lost 6kg in the last 6 weeks which I don't think is too worrying). My oesophagus related symptoms are now the least of my concerns (simply swallowing issues that don't occur as I'm not eating anything too big, dry heaving and mucus build-up). Instead, my more recently discovered bone lesions are starting to flare up more and more and my pain medication is getting a weekly boost up and up (and I'm not complaining ;) ) 

The family seem to be finally accepting my diagnosis (made easier by my declaration of zero visits for my first couple of sessions of chemo) and are now being a little more realistic about future prospects (and aren't trying to make me drink/eat disgusting new age "cures" for which I shall be eternally thankful for). 

Keeping the faith that my CX chemo will at least keep my lesions from growing and maybe even slightly shrink my tumour so I can eat something a little more solid by Christmas. 

Hi Jaeinkent, 

Yes all of what you've said we can relate to...my Dad is going through his second round of chemotherapy and his swallowing has improved but he also is suffering from real loss of appetite.  Nutribullet is a great idea - a real good way of getting nutrients and goodness inside by an 'easier ' form of swallowing. My Dad's last scan had shown a reduction in tumour/lymph nodes,  so hopefully you'll have similar results.

Good luck 

Lee

Hi All,

Jae I hope the chemo helps and good that your family are supporting you in the way you want them to. It is hard being an onlooker and we all want to 'fix' things.

Lee pleased your dad's chemo is having a good effect.

Our news is Kev had his first of the planned 4 cycles of post op FLOT. The District Nurse has removed the bottle this morning. Hoping all goes well. 

Also I managed to break my ankle as we were walking (getting fit lol). Went down a drop in the field and twisted it. As Kev said better me than him so I've taken one for the team! Fortunately it's not a bad break so no op or caste just a big boot for 4 weeks! It's the inconvenience of it! Luckily our lads live nearby so they are helping out but it's all about limiting risks whilst Kev is on chemo. Obviously I can't drive! I've had a bit of a meltdown as I can't help Kev as much as I want to. 

Anyhows just got to get through it - as the saying goes 
'It is what it is'.

Hope everyone else is chugging along and I do think of you all.

Still keeping the faith

Milly

Hi Milly,

oh bad luck with the ankle, so flipping painful and a real inconvenience! I bust mine last March, first bike ride of the year! That ankle still swells now annoyingly. Anyway, perhaps it's time for you to have a bit of tlc, I think you partners are so busy doing such an awesome job looking after us poorly bears that you forget to look after yourselves too, I know my HB does, I keep telling to go and have some 'me time', finally he treats himself to a long cycle ride now and again.

Jae, good stuff that your family are behind you, and yes, I feel your pain, my best mate is a herbal practitioner, you wouldn't believe the gunk I've been made to drink! 
Really good news about your Dad Lee, it's going the right way.

Had my liver ablation ok and then an iron infusion, still waiting for date for THE BIG ONE! Marked another milestone, my son graduated with first class honours last week, so proud of him. Another one next weekend as my daughter and husband celebrate part two of their wedding .

sending healing hugs and keeping the faith

Tabnabs