Hi Rayb

just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

do you know what a plo is in an operation? 

would be grateful if you have any idea

sorry to hear about your diagnosis x

Hi chrissycleverclogs 

so  the term PLO refers to ,Pharyngo Laryngo Oesophagectomy this is probably the main part of the operation  , i am  somewhat bemused by your other comment as i am as i have previously reported as close to 100% cancer free as can be determined one year post operative , unless you know different lol take care and keep us posted on your progress , remember we as a group are always here to help and support each other through all stages 

Regards

Douglas

Hi chrissycleverclogs 

so  the term PLO refers to ,Pharyngo Laryngo Oesophagectomy this is probably the main part of the operation  , i am  somewhat bemused by your other comment as i am as i have previously reported as close to 100% cancer free as can be determined one year post operative , unless you know different lol take care and keep us posted on your progress , remember we as a group are always here to help and support each other through all stages 

Regards

Douglas

PLO = pre loved oesophagus 

heck have I stumbled on something, 'they' are flogging our secondhand oesophagus' off on eBay!!!

who knew there was a market for them? 

please excuse flippancy, it's the only way I've survived the trauma of this!

keeping the faith

Tabnabsx

Tabnabs - I tried to Google that but just came back with a preloved sarcophagus.

hi Tabnabs 

i like that idea , but it's a bit late to ask for mine back now , i hope someone else is enjoying it if it's been sold on although i can't see much demand for it , anyway PLO is the way ahead , take it easy and be happy 

Regards

Douglas

Don't tell, 'one careful owner' :laugh:

LOL YOU TWO

Tabnabs and BFG (:

Sense of humour is absolutely essential through all this.

We have laughed so much , even at the worst times, we've managed to  keep it going.

It is strange , OC is no laughing matter, but we have laughed at the most inappropriate stuff- maybe a diagnosis like this gave us some perspective and enjoying the non OC stuff more than usual. We have been killing ourselves laughing at fast show re runs, Dick Emery , carry on film etc stuff that now sadly wouldn't see the light of day.

If you can't laugh what can you do eh!
Keeping the faith and keeping it real

Hilts

Hi all,

Well 'the man from Oncology he said yes!' Not sure my husband is particularly excited about more 'FLOT' but it's good news that he's being offered it. It will be just over 12 weeks since his first op and 5  weeks since his 3rd op. He wasn't concerned about his left lung still not being fully expanded but Chest X Ray done just to check.  If bloods etc all Ok he should start on 6th August.Fingers and everything crossed that it goes to plan.  

Kev looks and feels so much better, no longer grey. and his muscle tone is coming back. He has also gained a few pounds since coming home. Lots of Birds Cream cakes,  homemade cakes and milkshakes. 

So onwards we go and hopefully this is the last hurdle- I think he definitely deserves a gold medal! In fact you all do!

Oesophageal Olympics what a course  that would be!

Keeping the faith

Milly
 

That's fabulous news - medal awarded x

Hi Milly,  really good news for you both...def ģold medals:happy:

Yyyaaaaaayyy Millie,

Great news- if that is the way to put it LOL.

Just think- 8 weeks, then done, complete, finito.

Yes, not a fun filled 8 weeks, but my goodness, look how far you and Kev have come.

I totally know what you mean about colouring, husband was like a ghostly white, a transparent look. Then little by little his colour came back. Like I've mentioned ( probably more than once!)- it is very slow the improvements, almost unnoticeable,then all of a sudden, bingo, they are much more like they were before.

Olympic golds for all of us on this rollercoaster (:

keep that faith

Hilts

Absolutely blooming fantastic news for you both! Never mind a gold medal how about a platinum one! 
onwards and upwards!

very much keeping the faith 

Tabnabs x