osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Hi Hilts, I'm sure your wedding day was his best! Good to hear it's his birthday- another milestone reached and hopefully many more to follow.

    Lee

  • Hilts

    4 pints again??????  That's just rubbing my nose in it.  Can I ask what he drinks?  It may help me decide what my first pint in a pub is going to be for over 18 months.  And wish him a happy retrospective birthday from the bfg!

    Ray - glad to hear that you are now on the up and up and up.  Recovery mode is underway (I almost miss my huge amounts of pre-chemo dex - almost)!

    Milly - wish I could add  meaningfull stuff to the Nausea question.  Meds worked for me post-op - but my diet was and still is anything other than normal - more regular and high-energy to keep the weight up, But now post chemo will try and introduce a healthier balance of fruit/veg/salad.  The nausea I had was generally at the time of eating, rather than post eating - i had to ignore it and eat.  I often got some very strange reactions about 3 hours post eating - "late dumping" covered the symptoms, but rather than being an hour it was 3 hours after eating.  I stopped eating sugary things for a while and gradually re-introduced, and now only get the symptoms once every 2 - 3 weeks.  I think also that "volume" may be a trigger too, so tend to ensure that if i'm full - i don't force more.  It has improved though over time, so all I can add is to play around with the food to see what works - when you find something that does, then buy loads of it - then he'll go off it (the look on my other halfs face..   :-)), but things will improve.

    cheers all

    bfg

  • LOL,

    yep BFG- he's incouragable! Honestly. He's sitting opposite me watching a re run of the goal & reaction and is trying badly to sign 'sweet Caroline' arrgg.

    i need to go off the a health farm offering a weekend of the 'Keith Richards health promotion plan' !!

    He's on the 'local juice' Hooky. Hook Norton ales. Even I like that (:

    Millie- I go with what all the previous have said about the nausea. Absolutely trial and error, and it DOES improve over time, husband really stays away from potatoes , pasta and rice. Gives him dumping. Beer doesn't strangely enough ! He's also finding he doesn't use the glucose tabs any more- I suppose because he has sort of got used to what he can and can't eat. 
    As strange as it sounds and I remember from my nurse days, that even when people felt green sick, we would get them to eat, nibbles of things like crackers, toast , anything really. Also found when bud and was on the post op chemo if we shoved a load of water and delicious feed down the tube, he felt less sick.

    Anyhows

    keeping it up and keeping the faith

    Hilts

     

  • Gosh, so much to catch up on! 
    just to add to the nausea thing, ginger has always been my 'go to' 

    really interesting to read everyone's experiences, I'll keep them all in mind for later on. The latest is that I'm having micro ablation on one of the liver tumour, then oesophagectomy and other liver tumour slice and dice at the end of August beginning of September. Must admit now I've decided to go ahead and have the op, I just want to get on with it! 
    Thinking of you all and keeping the faith

  • Hi all,

    Pleased to hear that you've finished the chemo Ray! I wish you a smoother recovery. Well done as it certainly hasn't been a straight run for you.

    Great news Hilts and 4 pints should be your husband's nickname. Yes good win. Good win for Andy Murray too!I was lucky enough to see him win in 2013 - great weekend! 


    Thanks for all the helpful tips re sickness. He does take his time and does tend to stop when he feels full. As you say time and finding what suits seems to be a key factor.
     

    Now for our update. We knew when Kev came home with a moderate pleural effusion that it was a considered risk. We had open access to SAU which we used when he developed his severe allergic reaction.

    As planned he had his CT scan on Saturday,  appointment with specialist respiratory consultant from another hospital was arranged on Monday for Tuesday. Saw the consultant who said an urgent operation to sort the pleural effusion was the best chance to enable his left lung to expand. So took him in today, fast tracked through consultant met us there along with his registrar. Op planned for tomorrow- hoping it's keyhole but could be open surgery.  
     

    So please send positive thoughts as he has been through so much already. 3rd major op in 8 weeks. Not as big as first but nevertheless another big hurdle. He is amazing and physiologically it's very hard especially after what he's been through. Obviously I'm very anxious but hoping this will help him to fully recover. It's just so hard as this is a complication from the second emergency op and pneumonia. 
     

    Soo keeping the faith 

    Milly 

  • Be strong Milly,  you've both done really well along the journey,  so just keep going.  

    Good luck.

     

    Tabnabs - same for you, now you've made the decision- go ahead with both barrels! Good luck to you, it sounds like there's a good plan in place.

    Lee

    Lee

  • Milly,

    sending you and Kev, loads of good wishes and tons of positive vibes
     

    keeping the faith, all of them (like to cover all bases!)

  • Hi Milly

    With you all the way with special BFG positive thoughts.  If they are anything like my hugs, I've accidentally cracked bones, and once when a friend turned up with his wife (who is about Hilt height), she looked up and fainted just at the thought!  It turned out to be an inner-ear infection, but I tend to miss that bit out with the story.  :-)

    Hilts - Old Hooky!  I remember the beer well from my time up in Bath and Bristol - not quite by where it's made - but close enough.

    keeping the fffaith

     

    bfg

  • Hi all,

    Thanks for your messages of support. Bfg you made me smile!  The op has gone to plan - he is in a different HDU. Still a way to go and two drains in situ. Just wanted to let you guys know. Will update you in a few days. Please keep sending those positive thoughts!

    Hooe everyone else is keeping it up and keeping the faith

    Milly 

     

  • [@Milly58]‍  That's great news the ops gone to plan. Fingers crossed and "keeping the faith" :)

    Personal update: Had my meeting with my oncologist and have got my chemo plan booked in. I'm on Cisplatin and another drug I didn't catch the name of. Means I only need to go to the hospital (and thankfully it is my local one too) once every 3 weeks. As it is just to help relieve some of my (future) symptoms it'll be extremely light touch, I shouldn't even experience hair loss and shouldn't feel too ill on it. 

    Been really uncomfortable with stomach problems but oncologist and GP have now arranged a whole array of drugs to help (I'm starting to rattle...). Managed a 6 hour "nap" today which is the most I've slept in two weeks. 

    GP seems to have foolishly given me carte-blanche on any drugs I might want (she was most concerned by my diagnosis) so hey... worst comes to the worst I'm going have a real fun time! ;) 

    Family seem to have come to terms with the diagnosis (no more trying to get me to drink awful healthy drinks...) and I can now start planning fun adventures with my friends and family to pass the time.