osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Hi Milly, and everyone

    The nausea thing , i am sure everyone suffers from it at least a couple of times a week , it,s difficult sometimes not to wan't to clear your plate especially if it's something you are enjoying eating , i have found leaving that last two spoonfulls on the plate usually helps avoid this , i have always swore by green tea at least in the morning as its good for your digestive system or whatever we have left , my only current concern is the burping but i think that's quite common due to the re plumbing , and to all our other friends on here remember no matter what transpires everyone is here to support you and help in anyway we can , on a lighter note i am having my first day in the pub on Monday the 28th as this is the 1st anniversary of my operation  probably be 2 pints and a taxi home as i haven't had a drink since January 2020 lol , take care everyone .

    Regards

    Douglas

  • Enjoy Doug...you deserve it....

    Make it a few...cheers!

    Lee

  • Thanks Doug,

    Enjoy your drink or drinks and congratulations on your operation anniversary! Being in a pub is a novelty itself these days!

    cheers and as always keeping the faith

    Milly

  • Hi Lee

    I reckon 2 pints of tennants lager tops will see me into a taxi , cheap day out though ! lol  

    Take it easy

    regards

    Douglas

  • Hi Milly

    thanks for that , 2 pints of lager tops and in a taxi probably lol

    Take it easy

    Regards

    Douglas

  • Hi Y'all, 

    Oh Millie- Pernod & black. That is a blast from my past too. Along with ouzo (or oozy as we called it ), southern comfort and rum.. can not touch any of the stuff now, even the smell.... I'm sure we drank ouzo with bitter lemon yuuuuck!!!!! I have never liked wine, none of it. Nowadays it is pretty much only Ale with ginger beer top.

    Some 'perfumes' I feel sick smelling these days as I brings back memories of waking up with hangovers from hell ((((:::: Obsession & Poison being the absolute worst (:

    Doug , I really really hope you enjoyed your larger tops. After all you have been through, that 1st sip will be the best you've ever tasted (: and here's to many more- yay.

    Millie- his appetite sounds great and if he is getting hungry even better. If I look back to January that was  where we were, but take heart,  6 months on and it is ,as I have said many times,  a surreal , bizarre memory.  We still think and ask 'did that actually happen, was it real' ?

    One thing it has really brought home is the 'enjoy the now' and the 'small' things. I think we all have a tendency to look for the biggest and best of the things that the world has to offer, but since the last year, I have found myself really really enjoying a coffee by the canal- something I would always have found 'nice', but I am tending to notice more things around me......maybe I need to get back on the Pernod (:

    Always keeping it up and keeping the faith 

    Hilts

     

  • Hello everyone,

    Had my feeding tube removed on Monday and met my oncologist today chemo is now finished whooo, time to start living , slow road , small steps.

    My sickly feelings weren't as bad as some on here, just eating slowly and chewing seems to get me through most meals my portion sizes are usually half of what I used to eat and I do tend to leave something on the plate, I have twice had the dreaded dumping syndrome and it's not nice, won't happen again just have to be a person of moderation now.

    I think this is a massive journey for anyone going through this either the person diagnosed or the immediate family this forum has been a great help to me and I don't know how people whom have been through this journey without the likes of this have coped.

    Ray keeping it real 

    Feel free to ask any questions (it's good to talk)

    Be strong

    Maybe a few sherberts this weekend 

  • Hi Ray, good to hear your chemotherapy has finished and you're doing well - I think you are right about moderation...small steps at a time.

    Keep strong and good luck 

    Lee

  • That's such good news. Hopefully the journey ahead for you is a lot more gentle the one you've just completed. 

  • Yay Rayb

    You  made it through. It is such a relief finishing, and yes the recovery begins now the mission is complete. 
    It is the emotional stuff that is the most difficult I find. No one is bothering us anymore. I'm okay about it now, but for the 1 st month I was like " arrrg, are we supposed to be somewhere doing something?", despite them telling us he is disease free ( for now !) I wanted to know how they were going to check if there was a cell hiding under his little toe nail or somewhere- they soon sorted that out, by pretty much saying f- off and live LOL!
    Today is husband 57 birthday, his first since diagnosis, so a special day. 
    He went to the pub last night to watch the game! Me and the kids just couldn't watch it- I am not even English as such, south Wales, but I have 'leave to remain' over the bridge (:. He and the kids are English. I heard the pub in uproar, carried on out the garden, then heard the 2 nd roar, so we turned the telly on at 91 mins, I don't think I have paced like that for years and sweated more than when we lived in Egypt (:::

    After 4 pints (again) he came back, and I have to say I have never seen him so emotional, last time England pulled it off was 1966, he was 2!!!!. So along with being disease free, his birthday and England pulling off a cracking job, it was the best day ever for him ( apart from when he married me that is !)

    keep it up and keep the faith

    Hilts