Yaaay Ray your back.

Blimey though, you have been through it, but you are still on the ride with us all.

The body hates all these lines, it tries it's best to  get rid of them any what it can, so clots, infections, are pretty common. Husbands was starting to play upon 7 th cycle, but it did make it to the end. His arm is still sore where it was. Horrible things, but no real alternative given that amount of juice in one go.

Husband didn't have the final 2 oxiplatin due to a proper anaphylaxis!!. I think I read somewhere that only 40% complete the 8 cycles for one reason or another. As I remember you had a good pathology and I totally get where you are coming from when you say enough is enough.

BFG- so now you are done too. Now the recovery really begins. In terms of the emotional and physical. From now on it just better with no planned slapping down. Enjoy.

As ever, keeping it up and keeping the faith

Hilts

Hi all,

Firstly welcome to the new members of this Club which no one wants to be in but has helped us all.

My condolences on the loss of your husban Alex. No words are adequate fior such a huge life event as losing your loved one.

Ray what can I say - your path has been complicated too. You're still here and ffff to DNR!

You have gone through such a lot and you know, along with advice fro medics, what your body can cope with. 

You may have seen from my posts that my husband is on the snakes and ladders board too! A CT scan tomorrow and hoping for some good news. At least his vasculitis is going! I send my very best thoughts to you and your family for a smoother journey on this long road.

Lee I hope your dad is feeling better. So tough.

Happy hols to those who are getting away. Gerrie yes getting fit will help. Also Hilts husband had Inspirator training Device - we asked but the hospital said they didn't offer it unless you had lung problems. In hindsight would it have helped my husband - don't know but maybe worth investigating? 

Keeping the faith 

Milly

PS Had a nice distraction today as our eldest son and his girlfriend have moved into a new home - so busy helping them. My husband came later and it was very emotional as he nearly wasn't here - but he is and is getting stronger little by little. Touch wood etc etc!
 

Hi Milly,  good to hear from you.  My Dad has had a really rough few weeks - constantly feeling/being sick, no appetite,  no exercise,  sleeping most of the day, extreme hot/cold spells, loosing lots more weight...

The oncologist last week said he thinks the side effects are down to my Dad having his second maderna covid jab and this conflicting with my Dads second round of chemotherapy which now includes targeted therapy. 

The oncologist did say he expected these severe side effects to start wearing off this week and they have - the last few days my Dad has stopped being sick,  started eating again and even went for his first walk today in more than a month (he always use to walk every day).

Si I guess we just need to take each day as it comes and hopefully he'll keep improving little by little. 

I'll keep my fingers crossed for the ct scan tomorrow...good luck. 

Lee

Hi Lee,

I'm pleased to hear that your dad feels a bit better and is able to eat. Strange this COVID vaccine how some people are affected more than others without the complications of chemo etc. Hoping he continues to improve and nutrition and fresh air can't be underestimated.

Thanks for your good wishes.

Keeping the faith

Milly

Hi y'all

Millie- I knew it.  What a lovely lovely distraction. It really is quite emotional when you've been through all the 'merde' and then slowly but surely little chinks of sparkle start coming back into up your life.

i have had so many 'little sparkles' on the recovery road. Father's Day was one, along with the holiday.It is my husbands birthday next week, he'll be 57, but I have a strong urge to get him a 1st birthday card, as one yr one from diagnosis, but maybe not,  not sure.

Lee- you are having some 'little sparkles' too. Your Dad is improving (:.

intersting thing about the Covid jab- I go with the Dr theory. Giving a jab that is supposed to generate an immune response, to a person immunosuppressed by chemo is absolutely bound to have an effect. It is one of those cost/ benefit conundrums. Get the jab or get Covid !!! For your average 18 yr old, who don't get sick fine, but in someone immunosuppressed the jab will make you feel utter sheeeite, but getting Covid would be a whole lot worse. The effects of the jab will pass.

I am staring to think these sites, (this one in particular ) are 'addictive', even when I haven't got anything to report , I look to see how everyone else is getting along and can't help blathering on ! and when people don't post for a bit, I start worrying how/ where they are......

Jaeof Kent and BFG- I have just worked out how big you 2 actually are!!!. I am not a metric girl, I cannot visualise 2.02M!!! Convert to proper measures that is 6ft 7 ins OMG. That is 20 inch taller than me!!. My husband is 6 1, we make a good team as he can reach top shelves and I can get down into little space at floor level LOL.

Keeping it up and keeping the faith

HILTS

Hi Hilts and all,

I agree - this site is addictive and I too get concerned if I've not seen a post from a fellow warrior! I was pleased when you posted Ray as, after all, we've all hijacked your diagnosis chat!

My question for today is:

Any tips on the sickness feeling after eating? Overall as I've said my husband is doing well eating a smaller but normal diet. However he can feel nauseous afterwards. He has anti sickness meds which do work. We've tried swopping from normal tea with milk to lemon and ginger tea after breakfast. Any tips?

By the way I've read green tea is good for the lungs so he's giving that a go too!

Keeping the faith 

Milly

Hi Milly,  after experiencing the sickness with my Dad for the last few weeks,  the only things that really worked were:

Very small amounts of food- try really small quantities but as regular as possible. 

Meds - we've experienced the first anti sickness meds didn't work on the second round of chemotherapy,  so the oncologist changed them

Fresh ginger and lemon in an infused tea - with no milk. 

My Dad tried all different things but these seemed the most effective. 

Lee 

Hi Millie, 

just 'interviewed ' the victim (:

He says " absolutely " , felt sick a LOT.- but doesn't anymore.

It is all down to the new plumbing inside, which is probably at least half the size it was. He had 'dumping' at every meal until about 6 weeks ago, but as you all know, 'moderating' portion size is not his forte......

Also something called the 'vagus nerve' has been tampered with and takes a while to get used to it.

So take heart- it does improve, albeit slowly.

Short one for me today- no doubt I'll be back later

Kepping it up and keeping the faith

HILTS

Hi,

Thanks - good to know that it lessens with time. The meds works but good to have some other options which are more natural. Yes the vagus nerve - I recall reading something about that and appetite so it makes sense if it's been disrupted. Fortunately he does get hungry and is enjoying his food. He has had a small cooked breaki this morning  as he couldn't eat until after the scan. Just come back from hospital (in time for the match). He had a delicious concoction that smelt like Pernod!

When I was a teenager I got extremely drunk on Pernod and Black - so that put me off Pernod and Ouzo as well! Lol I think he needed an umbrella in and crushed ice. Big bottle of the stuff to drink in an hour! Contrast dye as well. 

Anyhow back home and the sun is shining.

Keeping the faith 

Milly