Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

Hi

I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

Hi Pascha,

Firstly, sorry to hear of your diagnosis as Bfg and Lee said 'Welcome' to what Hilts calls the Oesophagus club!

You are braver than me too as, like Bfg,  I didn't join for a while after my husband's diagnosis. We are a friendly bunch with different stories and experiences but there is a lot of positives too. I was overwhelmed at the start but my husband was more pragmatic. Googled lots - mainly NHS as there are  lots of American sites but also remember that the statistics are out of date and cover a whole range of people including age, general health etc all lumped into one.

Everyone reacts differently but I have found 'walking the line' the best way I try not to look too far back or forward - easier said than done at times. I won't waffle anymore but this group of 'strangers' who I now feel are fellow friends have helped me enormously as a patient's wife and I hope you find it helpful to as you start your own journey in this theme park! (Mainly riding a rollercoaster with a few dogems thrown in as I think Bfg said?)

Keeping the faith (Hilts got me doing this!)

Milly

Welly said Milly!

Well said Milly! Sorry for the misspelling! I am away for a night and slightly drunk ! Have a good day! It's a good idea to 'get away from everything for an occasional dat'

Lol Lee,

You've made me laugh out loud literally - yes some 'down time' is good and a drink or two!

Enjoy!

Keeping the faith

Cheers!

Milly

Hi I was told Stage 4 spread stomach nodes. Chemo didn't work as allergic reaction too bad 1st session so Consultant said no to anymore as it would kill me. Inoperable as stomach nodes to close to aurota however not all bad as radiotherapy went well to shrink tumour an within 2 weeks of finishing was able to drink an eat anything (chips my new favourite food!) this was done in April so mentally am good so do think once eating an drinking sorted makes one hellva difference to health and mental well being. Been out lots for meals an off to Burnham tomo only worry is get CT scan results tomo but as been pointed out if eati g an drinking well must be a good sign so I am hopeful. Keep well everyone x

Have a great time in Cornwall Jae, and in Burnham Janice.

Just to bring a little levity to our club, my husband is determined to get me 'surgery fit' so off we went for a 10 mile walk from Yarmouth to Freshwater Bay and back, am now lying down in a dark room with a very large G n T, keeping the ......zzzzzzzzzz.....

Gx

I've only been to work and back......

2 more newbies in our club!!!!! Janiceme & Alex. Welcome.

Now, gents (Jae and BFG). Size, I cannot compete with  either of you, I am 5ft 1 inch and size 3 feet, so basically cut yourselves in half and that is about the size of it LOL. My Dad reckons I would make a good model...... for dwarf and / or doll clothes!!! He too thinks he's funny........cheeky ***.

Janiceme- my husband had a horrible allergic reaction to oxiplatin. I guess the body just thinks, "nope, not having this"- but there are LOADS of other tasty chemo treats available.....glad the radio has helped. My goodness what you said about getting food down and how good that feels- absolutely with you on that one. My husband was clogging at every meal, even soft stuff, then after the 2 nd pre op chemo all 'gone' could & swallow again- I cannot even begin to describe the feeling for both of us to know that 'murder' was working. He actually said 'food has never tasted so good' (:

Jae- don't say  not to worry about you.... we do and will (: that is the whole point of this board.Wearing Big pants are fine, but it is the strangest thing that even though we are all strangers to each other, I have found this site/board so good for the soul because we all 'get it'

LOL Tabnabs- I feel your pain.....I loath exercise in any form- As many know I am an advocate and follower of the 'Keith Richards health promotion plan' ((((::::: One 'exercise' that husband 'invented' for himself was walking up and down the stairs, not at speed, just as you normally would, he was working not so much on fitness , but stamina. I managed 1 minute and had to go for a lie down & cake,  he worked up to 12 mins ! OMG- if that were me I would have to call for emergency services ! LOL

You folk have lovely hols. We went to Lincolnshire coast over whitsun week, a part of the world I have never been to.. we had the best time, eating fish and chips without any trouble, chucking millions (of 2p's ) into the pushers.

We are on tenterhooks waiting to see if we can go on our summer hols. The first foray out of UK since diagnosis and treatment end. After the year we have had, I really need to warm my bones (:

Keep the faith folks in whatever you are doing.

Hilts

Hi and a shorty too! 5.2 with eyes of blue lol. And most people think we are cute so will take that! My consultant only gave me half the dosage and seems to think any type will not do me any good health wise but as the radiotherapy worked on tumour as you say must be other options so will find out tomo as CT results. Forecast not too bad for weekend showers but think we know to take our chances with weather but still nice break. As I have been shirt of breath lately we have hired 2 motability scooters lol so probs look like Madge out of Benidorm lol. Keep well every one out there fighting xx

Hello to everyone

Dear me this has been busy since I last visited, welcome to the new members of the rollercoaster ride. I have been on my next dip of the ride , had my second round of post op FLOT made it 10 days after treatment and ended up in A&E again with an infection and fever with uncrtrolled shivering, moved from A&E to EAU ward where they decided to remove my Pic line and then the consultant hit me with what are your thoughts on resuscitation ie. DNR scary is not the right words, moved from that ward to an haemotolgy ward where I spent another 8 days and they discovered a blood clot in my arm, I have a appointment with the consultant next week, think my body has had enough of this chemo, time to try and move on. 

Everyone one on this ride, keep the faith and stay strong 

Hi Ray, you have had a rough time! I get what you mean about your body having had enough chemotherapy...its catch 22!

It sounds like you are slowly going in the right direction- be strong and good luck. 

Lee

Hi Ray, you have had a rough time! I get what you mean about your body having had enough chemotherapy...its catch 22!

It sounds like you are slowly going in the right direction- be strong and good luck. 

Lee