Evening All.

a busy hive today, all while I've been at work.

i've got a few things to come in on

Jaeofkent- Happy Birthday.make sure you get cocktails and/or cream tea -own room eh-if you were 'private' they probably wouldn't be this quick or thorough... they only do 'non complicated'stuff (: kerrching,LOL. I feel for your husband and know absolutely, exactly what he means. I wonder (ask him) that the feeling of the 'lack of info' is more about 'fear of the unknown', certainly was in my case. It goes along with the feeling 'why us' etc etc .Felt very much " they are not telling me everything", " they are not giving me enough detail" etc. Of course in hindsight they were telling us ALL they knew, the detail is often unknown to them, it is only when they get your 'dodgy' bit out under the microscope they will know the exact state of said dodgy bit- you will get a long list of what looks like something Bletchley park will need to work on, but folk on here helped my out. It is also a kind of 'bereavement' a sense of loss, like a big bulldozer is going through your world, the anger, disbelief, denial  bargaining , the search for answers ( look up Kubler Ross) etc.
i often think of us 'watchers' ( not you victims) when our loved ones get this sort of news , the 'journey' through for us feels like we are 'walking the line' like a high wire we can continue walking as long as nothing else wobbles it. I may be talking sheeeite, but hey just emptying me head.

Leechaps- very interesting that your Dad and Covid jab, now, I have had a spot of trouble. To cut a very long story short 4 yrs ago, Numb big toe, MRI, something called Tranverse Myelitis on spinal cord, Neuro's had no idea what caused it, but highly likely flu about 4 months before, no treatment etc. Fast forward to about 4 weeks ago. Said big toe + other 9 start buzzing. My theory= jab has certainly generated an immune response like it supposed to but has pee'd off my already miffed spinal cord, which was miffed after previous grossly overcross immune response. Low and behold I look on line and Guillen Barr syndrome is listed as one of the 'possible' side effects!

BFG- Even after a seriously pants time- we both have still managed to keep laughing- OMG, sometimes at the most inappropriate things. If you can't laugh what can you do eh. I always knew when the chemo was wearing off the sense of humour would return.

anyhows of now to 

keep the faith

Hilts

Dang - just read my post and that should have been a huge "thumbs" up. 

I did wonder! A huge what?

LOL BFG, 

I get it :wink:

the mind does wander I guess ! (Smiley face with tears emoji) ( is it just apple's that doesn't do emojis , or is it this site)

keep it up ...........

Hilts

Evening all!

Well it's half time so I thought I'd do a quick post!

Happy birthday Jae! We had a long wait from diagnosis (12 weeks) until knowing my husband was on for FLOT/op/FLOT. Although second FLOT is now uncertain but we will see. It is a really stressful time. Once you have a plan it is better.

Lee : I'm sorry to hear that your dad hasn't been well but thank you for sharing  the info re COVID Jab - my husband has had both his but before and after chemo not during- no problems. I hope your dad soon starts to feel better. It's very hard for you too.

BFG - congratulations on finishing your second round of chemo! Yes celebrate . Not sure if the celebration icon will work! 

Hilts - sounds like you have some specialities  of your own!

Tabnabs - go girl! Glad you've made your decision 4 pints and pizza is your aim too lol.Congratulations to your son! Proud moment!

My update - rash still there but not as inflamed. Surgeon spoke to us and he's requested the CT scan re pleural effusion. So far so good dare I say with new antibiotics! 

Hope I haven't missed anyone in this growing band of Oesophageal warriors! But if I have keep it up seems to be the new 'catch phrase'!

Keeping the faith 

Milly

hi Tabnabs

Wow thats quite a different journey to most of us on here and very encouraging to all those starting a stage 4  diagnosis  , us mere stage 2 mortals who have been treated over a year should count ourselves lucky , well i do anyway as i am 95% ok and cancer free now , its great to hear you are on the curative path now and i am sure everyone will be delighted for you , never worry about the surgery that is the easiest part and easy to cope with , i look forward to hearing  from you on here as you progress towards your cure , take it easy and god bless everyone on here.

regards

Douglas

Hi has anyone diagnosed stage 3 to fragile to have treatment. My uncle isn't wanting to eat anymore and he's sleeping all the time. He survived Covid in Feb this year and now under palliative care xx

I love him so much, suppose I'm feeling a bit helpless and wondering if there's anything I can do for him to help

A massive thank you for thisDouglas, really put my mind at rest, and thanks for good wishes

Gerrie, aka Tabnabs

Hi Gerrie

Thanks and you are welcome to ask anything at anytime , we are all on here to help and share advice or information, you take care now.

Regards

Douglas