Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

Hi

I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

Yes they've been brill!  Kev was aware when they took him back to ICU and were trying to figure out why he had such a rapid deterioration. A surgeon who was with him said 'stay with us Kev and we will save your life'. Gives me goosebumps just writing it. It's been a long five weeks that's for sure. Hoping the fluid goes and we can move forward. He had pneumonia as well. Certainly got his money's worth! 

Keeping the faith

Milly 

Great news Milly!

Delighted he's now home, it will make a huge difference to you both. 

cheers

bfg

Thanks! First day sitting in the garden.

Pleased to hear that you are almost there Bfg!

Keeping the faith

Milly

Just poppy by to say Hi.

I received a diagnosis of endocarcinoma of the oesophagus on Tuesday 8th June.

feeling pretty numb and trying to get my head around it.

initial CT doesn't show any growth into surrounding organs, but PET CT next Wednesday to check.

53 year old mum of 4 adult children and Nana to a beautiful granddaughter.

Welcome Pascha, 

I was diagnosed, officially, same day as you so I guess we're "unlucky buddies". Best wishes for a speedy treatment and recovery. 

I'm waiting for my referral appointment up to a London cancer centre where a PET scan is in my future too. 

Jae 

Hi Pascha

You are a lot braver than I was - it took me a few weeks on the rollercoaster, before joining this eclectic group.

Take all the positives - ithere are treatment options, the team looking after you have walked this path many times and will provide the very best of care.

Feel free to rant and rage on here - remember you are not alone in this, and as you will find out about us we are all at various stages in the journey.

bfg

Welcome Pascha, I can only reiterate the previous messages...

Lee

Hi Pascha,

Firstly, sorry to hear of your diagnosis as Bfg and Lee said 'Welcome' to what Hilts calls the Oesophagus club!

You are braver than me too as, like Bfg,  I didn't join for a while after my husband's diagnosis. We are a friendly bunch with different stories and experiences but there is a lot of positives too. I was overwhelmed at the start but my husband was more pragmatic. Googled lots - mainly NHS as there are  lots of American sites but also remember that the statistics are out of date and cover a whole range of people including age, general health etc all lumped into one.

Everyone reacts differently but I have found 'walking the line' the best way I try not to look too far back or forward - easier said than done at times. I won't waffle anymore but this group of 'strangers' who I now feel are fellow friends have helped me enormously as a patient's wife and I hope you find it helpful to as you start your own journey in this theme park! (Mainly riding a rollercoaster with a few dogems thrown in as I think Bfg said?)

Keeping the faith (Hilts got me doing this!)

Milly

Welly said Milly!

Well said Milly! Sorry for the misspelling! I am away for a night and slightly drunk ! Have a good day! It's a good idea to 'get away from everything for an occasional dat'

Well said Milly! Sorry for the misspelling! I am away for a night and slightly drunk ! Have a good day! It's a good idea to 'get away from everything for an occasional dat'

Lol Lee,

You've made me laugh out loud literally - yes some 'down time' is good and a drink or two!

Enjoy!

Keeping the faith

Cheers!

Milly