osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Hi Lee,

    Thanks and I hope your dad feels better this week having a rest from Chemo will be good.

    Keeping the faith

    Milly

     

  • Yaaaayyyaaaa. Millie !!!!! He's home.

    such good news.

    i hope he appreciates all the weed slashing you have done (:

    All a bit surreal for you both. Probably sitting there looking at each other and thinking ' WTF just happened' it is quite difficult I found ,to find stuff to talk about that wasn't about 'it'.

    As I have said many times on here, " I am so glad they saved my husband, so I can now sometimes cheerfully kill him myself ' LOL. 
    Talking about 'saving'. I know Millie, the care and dedication of the Surgeons, oncology and the tens of others who all made it possible is incredible. I get really really x100 miffed at our disgusting media, always dissing the NHS, picking holes. We have had nothing but brilliance throughout. I mean , imagine sitting there for 8-10 hours operating on someone, maybe some of those disgusting media specimens should try doing a worthwhile job themselves!!

    While I was going mad at the start, I was surfing ( as you do, just to wind myself up even more!) . A lot of sites are American and always talk about 'cost', bless 'em. I worked out , as you do, that all in what our folks have had in terms of treatment would cost upwards of $ 200,000 !!!! No wonder their survival stats are rubbish! If you can't afford , you don't get . The media want to remember that when they are moaning.

    ooo- I do like a good rant (:

    I totally know what you mean about 'knowing' folk. I feel I know you too and others.  We have shared our deepest darkest times and know exactly what it is like. Sharing our thoughts with 'strangers', but for me that has been the 'beauty' of this board, we can spill in total privacy, well, anonymity and for me it has been more than extremely cathartic and helpful

    Sutty was indeed lush, totally un gentrified and Mablethorpe ,again totally un reconstructed . I let rip in the arcades- god it was fun spending millions...... of 2p's that is.

    Anyhows off now to keep the faith. (:

    Hilts

     

  • Ye-  BFG

    it is a bit of a 'twighlight zone' time for sure.

    When he was feeling pretty duff after the 2nd and 3rd I kept the mantra going "only 4 weeks to go, the done, finito" it is such a weird thing. After ' living the dream' for 9 months, then bang it is over. 
    we were both a bit wobbly for a few weeks after , almost looking for thing to do, had we forgotten something etc etc. It is soooo all consuming , both physically and mentally that it is a bit of a 'let down' - don't know how else to put it-when it finishes weird or what. It's like your life has been strictly regulated for nearly a year, then you are free again. We are certainly moving through the emotions, but the holiday was a real treat.

    take care and keep the faith

    Hilts

     

  • Yes they've been brill!  Kev was aware when they took him back to ICU and were trying to figure out why he had such a rapid deterioration. A surgeon who was with him said 'stay with us Kev and we will save your life'. Gives me goosebumps just writing it. It's been a long five weeks that's for sure. Hoping the fluid goes and we can move forward. He had pneumonia as well. Certainly got his money's worth! 

    Keeping the faith

    Milly 


     

     

  • Great news Milly!

    Delighted he's now home, it will make a huge difference to you both. 

    cheers

    bfg

  • Thanks! First day sitting in the garden.

    Pleased to hear that you are almost there Bfg!

    Keeping the faith

    Milly

     

     

     

     

  • Just poppy by to say Hi.

    I received a diagnosis of endocarcinoma of the oesophagus on Tuesday 8th June.

    feeling pretty numb and trying to get my head around it.

    initial CT doesn't show any growth into surrounding organs, but PET CT next Wednesday to check.

    53 year old mum of 4 adult children and Nana to a beautiful granddaughter.

  • Welcome Pascha, 

    I was diagnosed, officially, same day as you so I guess we're "unlucky buddies". Best wishes for a speedy treatment and recovery. 

    I'm waiting for my referral appointment up to a London cancer centre where a PET scan is in my future too. 

    Jae 

  • Hi Pascha

    You are a lot braver than I was - it took me a few weeks on the rollercoaster, before joining this eclectic group.

    Take all the positives - ithere are treatment options, the team looking after you have walked this path many times and will provide the very best of care.

    Feel free to rant and rage on here - remember you are not alone in this, and as you will find out about us we are all at various stages in the journey.

    bfg

  • Welcome Pascha, I can only reiterate the previous messages...

    Lee