Hi Daisy

Sorry to hear about the diagnosis,  and just to back up what Hilts says - it's rare for barratts to lead to cancer,  and is carefully monitored and managed with omeprazole.  Brother in law has had it for years,  and certainly hasn't stopped the caffeine,  alcohol or chocolate. 

Hi Daisy

Sorry to hear of your diagnoses, as previously mentioned you will be monitored and be put on omeprazole and keep enjoying the chocolate, alcohol and caffeine.

Hi Everyone

On my diagnosis last year the oncology team told me to put on weight 5ft 11 and 15 ½ stone , I didn't have a problem with that lol, eat as much as you want and drink carte Blanche, I wasn't advised to get fit or any mention of fitness, unfortunately my surgeon had a different mindset totally when I first met him I was advised to loose weight for the operation(2 Stone if possible), get as fit as possible for recovery purposes from the operation, I had a turbo trainer in the house and used it every day peddling along to you tube videos trying to keep up lol and walking the dogs legs off.

Just when I thought I was coming out of the low point of the first round of CHEMO Friday gone the bloody white blood cell injections show there lovely face and I am in agony, I did have an episode pre op to the injections but managed the pain with ibuprofen, this time Ibuprofen and Oramorph not touching the pain, wife rang hospital and advised to dial 999, Ambulance came administered a lot more Oramorph and I was put on gas and air ! ,let out of hospital 530 in the morning.

I`m keeping the faith on this roller coaster ride, Bumping along whooooo.

Gosh, glad you are ok! Sounds very scary. 
 

thanks to all for kind (and humorous comments) made me smile. I think I will look like Keith Richards soon, with all the stress :laugh: 

Hi Daisy,

it must have been a shock for you. I can't say I know a lot about Barrets but from the comments on here it sounds positive and that you will be monitored.It's so hard especially with your husbands diagnosis. I am pleased to hear his condition is being managed and he's feeling better.  Re Keith Richards - I've been and bought some more anti aging cream lol.

Ray B so sorry to hear of your recent trip to hospital- sounds very painful. It sure is a roller coaster. Take heart that you'll get there. As Hilts said many of the 'victims' have set backs along the way. Not what you want physically or mentally! I've been back in 'brain whirring' mode. 
 

Your experience re pre op does show how advice can be conflicting. It was a friend of a friend who has had op that advised weight gain and getting fit. Also this site was very useful when I was just reading the posts from you guys. 

My guy is still in Step down. 

Keeping the faith

Milly

Ray,

This isn't so much a roller coaster - this is being on a twister, on a roller coaster, with dodgems being thrown at you from all sides!

I always read the side-efffects of the stuff we're taking just to make sure I know what may be heading our way, and - touch wood - apart from a couple of aching bones on my first one during the first cycle, I've been ok.  But having gone through the infected feeding tube scenario after the op where the pain was horendous - I feel for you.

Glad to hear you are back home though - that always helps.

bfg

This describes it perfectly lol

https://youtu.be/lLMudSNOCRg

Hospitals are great places, when you need them but so glad to be back home.

Thanks dooggreg, nice message. 

Lee

Hi Lee

Thanks for that , and you take care of yourself 

regards

Douglas

Who can help me come up with a word to describe the constant checking of a forum to see if anyone has posted an update?

It's always a challenge  - I don't like to ask how things are, as it seems intrusive - and like others, I don't tend to post negative stuff unless I can make it funny.  

But anyway - enough rambling.

I'm now 1 week post 2nd cycle of round 2 of FLOT - counting down the days (22 or 3 weeks tomorrow) when my final pump can be disconnected and the picc line removed - and as my surgeon said, let the recovery commence (I'm still aiming for the 4 pints as my 1st tick-box hilts!)

FLOT 2nd time around is slightly harder than 1st time, but still manageable - and again I would advise to share with your respective teams anything that's different, or unusual - there are a panacea of drugs out there that can help.

But enough of the bfg - just to let others know that I'm thinking of you all too!