Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

Hi

I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

Great news Milly!

I spent a couple of nights in ICU, being very well looked after by a whole host of angels, before being taken back to the ward. It was a surreal couple of days and for a few days on the ward - time didn't make any sense - what felt like hours could be 10 minutes, and of course they are taking tests, bloods, bp etc at all times of the day.

My "messaging" was all over the place - it could take 15 minutes to respond or even just to write a simple comment - as what I had been writing was complete rubbish - so don't worry if you get gibberish, or it takes a while. 

You should be able to get the phone number for the nurses station when he is back on the ward- what my other half didn't realise was that my room was next to my nursing station, and the number of times she phoned up "after" we had communicated all concerned - it was quite funny, as she thought I was psychic when I told her off.

Cheers

bfg

Hi bfg, Hilts and all in this 'club',

Thank you for your warm wishes and information! I don't know about my husband being muddled I couldn't remember my password to this site! 

Yep he's still in ICU as expected and is in for the night getting spoilt by the nursing staff! He is doing well, so far so good. He's been sat in a chair and the staff have been great. I've been able to speak to him on their phone and and seemed pretty good considering everything. The surgeon believes that they've got it all and good margins. So best news possible- just typed a I instead of an o 'hello hello' lol. 
 

Relieved doesn't cover it! He had keyhole on his abdomen and open up top. Hopefully we can FaceTime when he feels able to in a few days. 

Hope you're doing OK bfg after your first FLOT and regards to all. Thanks again.

Milly who is feeling more like Mandy again!

Yaaayyyy, 

Excellent news Millie58.

your garden is hopefully weed free by now. Hope you have exhaled.(:

No mercy on the patients. They had my guy out in the chair the next day! Much to his disbelief and horror (: I think he thought it would be like 'carry on matron' ! LOL. Day 2 or 3 up and in the shower ......., no 'brow mopping ' stuff, but plenty of opiates (:

So now, 3/4 done , just think he will be eating probably by day 5 , I think BFG really enjoyed his 'textured chicken' as did my guy (:. I think that motivates anyone to get cracking with the eating (: Another 10 or so weeks , all done, finito. Then no doubt you will sit and look at each other and think WTF just happened.....just as we are, but as ever ,

keeping the faith

Hilts.

That's really good news Milly 

Lee 

Hi,all,

Thanks Hilts and thanks Lee. It really does help having support frim people who understand. I hope you enjoyed the golf with your dad Lee.

I'll keep you all posted.. 
 

Milly

 

Hi all,

A quick update to say my husband has moved out of ICU to the step down ward. The reason for  being a little longer in ICU was due to some 'gunge' left behind from pneumonia in 1994! This has been cleared but they monitored him in ICU. Seems so strange that I can't visit but I have to say he is constantly being assessed/seeing various professional so in between he needs his rest. So it's probably better for him as a patient and easier for the staff! 
 

Some good news for him today was the football team he supports and is a season ticket holder (when you could go) managed to hold on and stay in the championship! 

He has been a walk Hilts. Keeping the faith.

Milly

Good news Milly. 

We are seeing the oncologist for the scan results this week-its that time now where we are not sleeping and worrying constantly! My Dad feels good and strong in himself but the fact that he cannot swallow solid foods again is what's scaring us. We have to keep positive and hope for good news. 

Lee

Hi Lee,

As Hilts says worrying is natural. We know in our heads it won't change anything but it's your dad and it's very hard. A positive is that he feels well and strong. The waiting is very difficult I can only advocate what Hilts said to me - distraction helps. Do things with your family or on your own.

Keeping the faith. Thanks Hilts.

Milly 
 

Great news about hubby Milly. ICU was pretty intense at the time, so I bet he's relieved to be back on the ward. Drains will start to be removed and then it's on to liquids, followed by minced and moist! I'm a WBA fan btw, so will end up watching them play your husbands team next season - probably. 

Lee - thinking of you.  Nothing worse than the waiting, but feeling good and strong is definitely a plus. 

Bfg

Thanks bfg and Milly 

Lee

Thanks bfg and Milly 

Lee