osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Is it ok to ask your symptoms ? 
    I go for an urgent gastroscopy on the 17th . 
    my gp and upper Gi consultant were all within 5 days and 10 days altogether for the gastroscopy , very quick . 
    The consultants exact words were I don't want to scare you but we will be looking for cancer . 
    my paper work has just come and it says biopsies . 
    ive come on here because I've not heard anything about voice change . 
    mine has and if I say more than a few words it strained very squeaky and I feel like it's going ?? 
    hope you don't mind 

    Thankyou 

  • Hi all,

    Firstly, great news Hilts! You definitely seem to be on a quick route. Don't blame you doing some retail therapy - you definitely deserve it. 

    We have been to meet the surgeon this afternoon. Apparently two will be performing the operation planned for 4th May. A lot to take in despite my research. 

    RayB like you it's likely he won't be allowed visitors so any tips on what to take in would be appreciated. Doogreg did you have open surgery too? 

    #keeping the faith Hilts 

    Mandy or Milly or maybe Molly

  • Hi, 

    still under the surgeons though, but next seeing them in June,

    I don't think we asked the surgeons very much - apart from ' get rid' (:

    I think it was useful NOT knowing the inns and outs as we felt 'what choice did we have' !

    I think or at least hope that you take some comfort/reassurance from us lot on here, Knowing that there are (quite a few of us) are out the other side, in reasonable shape. 
    Ask away though for what is that saying ' the lived experience' LOL

    I didn't buy much LOL, but I just liked wandering around town, with quite a lot of other humans about, sun was shining and the coffee was hot........a good start (:

    hilts

  • Hi,

    It definitely helps knowing that others have come through the op and available for advice. Thanks.

    Pleased that you enjoyed your new bit of freedom and it will be interesting to hear how trial progresses. 

    Mandy

     

     

     

  • Hi Kodi, 

    I never mind sharing our 'surreal' experience with full technicolour gory details LOL

    The short answer in your case, is who knows- that is really not meaning to be flippant, but there is so much down there , in the gullet, and whenever you go for any procedure they always look for anything and everything and for most investigations like that they tKe biopsies when down there.

    I would imagine you have an appointment brewing to discuss it with Doc's.

    As for symptoms, if you are talking about oesophageal cancer, they are hugely varied. It is not seemingly a cancer that likes to be consistent in its presentation. I think it would be fair to say, if you flick back through post, most of us hand some trouble swallowing food, completely out of the blue, in our case one day he was fine, literally the next food getting stuck on the way down.

    My guy has no voice change as a symptom at all- unless shouting at the kids(:, or TV LOL. Serves him right eh

    Hope this helps, but I bet you are in a right state at the mo, wondering what is going on- fear not we are all 'experienced' in the rollercoaster that keeps on coasting- ask away.

    best wishes

    Hilts

  • Thankyou for replying . 
    I guess it's not long to wait . I hope they tell me something tomorrow . 
    I too get things stuck and I had a barium swallow that shows the biscuit they gave me getting stuck but it eventually went down after fluid . 
    I get pain in my chest after drink or any food even jelly and custard . 
    I'm constantly clearing my throat and cough and bring white up . 
    my doctor thought this was drip ? 
    My voice goes after food especially . 
    I have a lot of symptoms on the list but my Weight stays the same at the moment . 
    where do I look at the posts ? 
    Thankyou x

  • Hi Kodi,

    So tomorrow is the big day. Fingers crossed for you. Trust me when I say 'I know exactly how you feel' (:

    You must come back on here when you know more.
    Good or bad, belive it or not this is the worst bit, the not knowing. Once you know either way then you can start 'processing' the whole thing. For us, once we has a plan, things, emotionally became quite a bit better.

    We on this board are 'world experts' in the 'lived experience' - such a cheesy expression (:, one of the smart a.... marketing/advertising thingy's.

    As for 'old posts' on the board just go back through the pages at the bottom.

    If you want to look at a specific persons 'lived experience' LOL, then tap on their name , in blue on the left and look through replies and followed discussions.

    I now think I must appear a world b******* expert!!! I only got on this ride in very late July last year!!. I just flicked through my oldies, from the start and they are pretty emotionally dramatic at the start, looking at them I cannot belive it is the same person! This site and board has been incredibly seriously helpful, informative and has seen me through really.

    It is great to be able to spill out your thoughts, emotions and experiences'in private' LOL, - I know millions might read it, but it is the anonymity that sets you free to share your thought freely. Who knows we might all know each other without knowing so- if that makes sense(:

    So fingers xxxxx for you. make sure you come back with the news- and yes I am a total nosey Parker (:

    My emojis never appear well on here, so I just use the sort of smile

    Hilts

  • Thankyou . 
    I'll do my best to get some news tomorrow . 
    I'm having it done under sedation though . 
    I couldn't imagine swallowing a camera when I can't swallow tablets

    Thankyou for caring . It's tomorrow afternoon x

  • Hi Milly and everyone else reading 

     

    yes i had the full operation but it was no problem at all , i have been posting my progress since my operation last june and i am getting back to normal now with not really any dramas to report , as i have said to others just ask about anything , its always good to hear from someone who is as far down the recovery route as me and how to deal with any hiccups which buy rhe way are also  a side effect of the procedure , anyway ask away and take care.

    Regards 

    Douglas

     

  • Hi Rayb

    so pleased you got great news , i know where you are coming from , after all the high activity everything goes all quiet and you are suddenly left without constant medical attemtion and that is all a  bit bewildering , trust me that is a good thing as it allows you ttime to heal properly , good about your weight i am still  a 30 inch waist and 77kg but am good with that now , as usual take care and keep in touch.

    regards

    Douglas

    Douglas