Welcome to Cancer Chat Tomtom12 although I'm sorry about the very rare cancer diagnosis you've been given.

I spoke to a member called Allypally123 about a similar diagnosis a couple of weeks ago so if you'd like to get in touch with them just click here.

Our cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd to speak with them about this as well.

I can't begin to imagine how difficult this must be but our community are here for you and will do what they can to support you on this journey.

Kind regards,

Steph, Cancer Chat Moderator