Left to deal with it alone after cervical cancer

Hi all,

 

I was diagnosed with cervical cancer on March 31st and was in hospital within 3 weeks to have a radical hysterectomy. Due to covid I was put in hospital and was allowed no visitors.  I had my overies removed so was then put into early menopause,  im 42 and am very lucky to have two wonderful children.

Three weeks later I was phoned to say the cancer had been removed and see you in three months.

I was given no help from then on, I have seen no doctors or have spoken to no one since. I feel so down and am still in alot of pain, I dont know how im supposed to feel....it was so quick that my mind never got the chance to catch up. To top off this awlful pandemic year, I lost my mum to myeloma 2 weeks ago...I feel so sad with life in general, I've put on.weight, my sex drive is zero and because nobody seems to want to give me advice on how I should be feeling after such an horrendous operation im here in the hope someone has been through the same and can give me some advice.

This is my first post so forgive me if I've rambled.

 

 

  • Dear Kerry what a horrible time you have had and to lose your Mum as well is too awful and I'm not surprised you feel so low.  I was 36 years old when I had a full hysterectomy and this was due to severe endometriosis which I'd been left to suffer with for years, my daughters were six and eleven years old and like you no one helped me after, it wasn't until I broke my wrist five years later that I was told I had lost bone density and should have been put on HRT, so check that out, it helped me a lot.  We have to be pro active in getting what we want so ask to see a lady GP and get this sorted.  Pain wise I would say that it took me at least a year to feel less pain and soreness, apparently everything has to settle back into place after major surgery.  Don't be hard on yourself, your sex drive will return when you aren't grieving for lost body parts, the fear of cancer and the death of your Mum, I'm sure your partner will understand this.  Just get through each day without pushing yourself too hard, take help if you can and ask others to help.  As each day passes you will find it gets a little easier.  Good luck with your recovery.  Carol x 

  • I'm 46 and had a radical hysterectomy in June 2020 and like you no visitors or help. I had an MRI in sep but I had to push tor this follow up. I was due a smear now but delayed due to covid. I didn't struggle emotionally straight away but it all hit me a few months on and I am now on HRT which helps but I've also put on a stone in weight which effects my self esteem. I'm so sorry you've gone through such a hard time as well as loosing your mum. Ask any questions you need x

  • Thanks for you're post, I have only just had another MRI since my op last April. I had to push for that myself as have been getting quite alot of pain. Just before Xmas I was told they have either damaged my bladder or the cancer is back so an MRI was booked. I've been on HRT since April and have put on so much weight which the same as you has been alwful for my self esteem.  I thought after nearly a year I would start to feel better but with total honesty I can stay im not the same as I was before. Hopefully as I've had time to rest at home due to being furloughed I will start to feel better. Im really sorry how awlful its been for you aswell, really hope the HRT is working well for you x

  • Thank you Carol for your kind words.

  • Oh Kerry, I'm so pleased you pushed for the MRI and I'm wishing you the best, my smear has been put off fir a further 3 months which checks for residue vaginal cells so with the delay just hoping all ok. I've just spoken to my consultant on the phone  for my review and he thinks unlikely as they also took all lymph nodes and MRI clear so hope the same for you. I think we ladies underestimate the impact of this! My consultant has swapped me from tablet HRT to patches and it doesn't get stored in the liver like tablets so shouldn't have so much weight gain. Which form are you on? He also said impact of limited mobility and lockdown Xmas has prevented usual movement and excercise x

  • Im on tablet form of HRT, its recently been changed because I was getting awlful side effects from the previous ones. I didnt realise you could have patches, thats definitely something I will speak to the doctor about. I also didn't realise you needed another smear after a radical hysterectomy, the only check I've had since the op was my consultant checking I didnt have a prolapse.