Hi all. Just a heads up, I am about to talk about pee! I'm having a flexible cystoscopy tomorrow after a referral to the haematuria clinic. I'm female and a few months under 40 but used to smoke heavily.
I'm not thrilled about having to do this in a face mask or having to go to any appointments alone but hey ho.
I've been having a lot of urinary symptoms which have got worse and worse (urgency, frequency including at night, difficulty actually going, leaks when I don't go). Spoke to GP and did a urine test which found traces of blood and leukocytes but no UTI.
I could see my results on the Patient Access app and when I saw about the blood I thought oh, do they test for blood? But I've had blood in my pee quite a few times over the past year. And then I googled blood in pee, and the world went a little bit sideways when I saw the be clear on cancer page.
I had no idea it was serious, I hadn't thought to mention it to anyone! So I told my GP surgery, was given a referral that day to the haematuria clinic and I'm having my cystoscopy tomorrow. I also have a bit of abdominal pain.
I'm very worried that by ignoring this for over a year, if I do have cancer it could be more advanced and I'm more likely to lose my bladder or worse. Also this just goes to show that googling isn't always bad - sometimes it alerts you to important things.
I don't understand how much they can find out at a cystoscopy - will they know if it's cancer there and then? How sensitively do they tend to tell people?