Haematuria clinic / flexible cystoscopy tomorrow

Hi all. Just a heads up, I am about to talk about pee! I'm having a flexible cystoscopy tomorrow after a referral to the haematuria clinic. I'm female and a few months under 40 but used to smoke heavily. 

I'm not thrilled about having to do this in a face mask or having to go to any appointments alone but hey ho.

I've been having a lot of urinary symptoms which have got worse and worse (urgency, frequency including at night, difficulty actually going, leaks when I don't go). Spoke to GP and did a urine test which found traces of blood and leukocytes but no UTI.

I could see my results on the Patient Access app and when I saw about the blood I thought oh, do they test for blood? But I've had blood in my pee quite a few times over the past year. And then I googled blood in pee, and the world went a little bit sideways when I saw the be clear on cancer page.

I had no idea it was serious, I hadn't thought to mention it to anyone! So I told my GP surgery, was given a referral that day to the haematuria clinic and I'm having my cystoscopy tomorrow. I also have a bit of abdominal pain.

I'm very worried that by ignoring this for over a year, if I do have cancer it could be more advanced and I'm more likely to lose my bladder or worse. Also this just goes to show that googling isn't always bad - sometimes it alerts you to important things. 

I don't understand how much they can find out at a cystoscopy - will they know if it's cancer there and then? How sensitively do they tend to tell people? 

  • Hello midnightcat,

    Since no one replied to your message yet I wanted to stop by as ask how did you flexible cystoscopy go?

    I hope all went fine and that your results turn out to be nothing sinister.

    As for your questions, not being a medic I'm afraid I'm not able to answer them but if you feel like speaking to someone medically trained might help until you get to hear from your doctors again do feel to contact our friendly team of nurses on this phone number 0808 800 4040, Monday - Friday between 9 a.m. - 5 p.m.

    Wishing you all the best,

    Renata

    Cancer Chat Moderator

  • Thanks, ended up having a convo on another post about them so I did get some support but it's kind of you to reply.

     

    It was clear which is good news except it means they haven't found the cause yet if there is one - they are also sending me for a CT scan of my kidneys so waiting for a date for that.

  • Well my CT urogram suddenly came through for this Friday, didn't expect that as they said it would be 2-3 weeks. 
     

    So I am back on the worry rollercoaster! At least with the cystoscopy they tell you then and there if it's ok.