Granulomatous mastitis

Hi there

Has anybody here had or have granulomatous mastitis? It mimics inflammatory breast cancer and I've had it 3 years x

Parents Reply Children
  • Hi, I have recently been diagnosed with GM but I think I have had it for nearly 20 years.  I had mastitis whilst breastfeeding and developed an abcess which didn't heal even after months of antibiotics. I eventually had surgery but no mention of GM was made.  I have had several episodes over the years of a painful inflammed lump in my breast but thought it was due to a blocked duct. The episodes always settled after a few weeks. 

    A few months ago I had another flare. It had been a few years since the last one.  I also noticed another lump but wasn't too concerned as my breast has become quite lumpy.  Fortunately,  I was called for my routine mammogram.  The new lump was a cancer. 

    I had surgery for the cancer about 2 months ago and the area of GM was also removed.  The cancer area has been no problem but the GM has caused issues with wound healing. My radiotherapy has been delayed but with the help of the amazing breast care team it is improving. 

    It seems like everyone's experience of this condition is very different so I can't really offer any advice except that you should never ignore a new lump or assume it is just part of the GM.

  • Hi I was just diagnosed with this condition . Mine started after I had cancerous cells removed via a lumpectomy . A lump developed and I had another biopsy which confirmed granulomous mastitis but now they want more biopsy's plus testing for tb I'm very confused I have no wounds but a lump and severe itching