Hi,  was diagnosed with it about 12 years ago, Ifound a very large lump one morning and contacted my doctor, to cut a very long story short, after biopsies and antibiotics and numerous scans I eventually developed abscesses which were treated with steroids, this was apparently the only way that could prove that it was the disease, it cleared up when the steroid course finished but I have scarring and the lump is still there but is softer, I still get pain sporadically but am just grateful that I still have two breasts, at our very large breast clinic I was the 5th case in 9 years, I was lucky that they had seen it before as it is so rare

Hi,  was diagnosed with it about 12 years ago, Ifound a very large lump one morning and contacted my doctor, to cut a very long story short, after biopsies and antibiotics and numerous scans I eventually developed abscesses which were treated with steroids, this was apparently the only way that could prove that it was the disease, it cleared up when the steroid course finished but I have scarring and the lump is still there but is softer, I still get pain sporadically but am just grateful that I still have two breasts, at our very large breast clinic I was the 5th case in 9 years, I was lucky that they had seen it before as it is so rare