Breast cancer

Hi I was diagnosed with aggressive breast cancer (Her2 positive). CT scan also showed something going on in my stomach which I've had MRI for yesterday. Fingers crossed it's not related to the cancer. 

Just want to get started on my treatment. I've been given a choice of chemo, op and radiotherapy or op, chemo and radiotherapy, 2 different consultants and really don't know which one to choose !!

  • You're entitled to be a nightmare patient lol !!

    I'm ok I just keep forgetting I'm not suppose to lift or pull anything with my right side oops!! Just done my exercises and been a walk down the village, bet I've scared all the curtain twitches with my green socks, greasy hair and drain ! hahaha. 

    Has the head eased today ? Xxx

     

  • Im trying to stay indoors as much as possible for now. Apparently my most vunerable days are 5 - 10 after chemo so im trying to stay as safe as possible. But i can't wait to get out again! My head isn't sore today but im feeling more tired and slightly light headed. Hope you're recovering well

  • Hi Amy

     

    The MRI measured 7.5

    On the 1st September the lymph's nodes are being removed and tested. 
    Tow weeks after a mastectomy on the right breast and reconstruction. Hopefully being agreed this week coming with plastic surgeon. 
    chemo and radiotherapy being discussed after major operation completed and know where I am going with the nightmare!

    just can't believe all this is happening. 


    Now aloud no one with me in hospital for however long my stay is I have to go it alone cause of Covid. 
     

    How are you?

     

    thanks for remembering me

     

    Maxine

  • Hi maxine. Is the measurment for the whole tumor? My consultant doesn't want me to have reconstruction soon after surgery. But they said it will happen but will be a wait. I still can't believe its happening either. Having chemo felt so weird, but i haven't got much choice. Im ok thanks, feeling tired and light headed today, so grateful its not too bad for now. I hated going alone too and im not looking forward to it if i have to be in hospital on my own for surgery! As ive said before, always here to chat

  • Hope you're getting plenty of rest. Yes if it wasn't for the covid things would be a little easier I suppose !! I live away from my family and haven't seen them since January so it's hard for us all as they want to come and visit and support me but I've got to say no for now as I just daren't risk it !! But they understand and when this is all over I'm sure there'll be a party of some kind planned !! 

    Do you have all your family with you ? Have you had to stop working ? 

    I hope Maxines ok she hasn't replied to any messages, hopefully she'll be ok and ready to talk on the next few days cause it does help. 

    Take care xxx 

  • Hi karen. Sorry for the late reply, ive been so tired the last 2 days! I live with my mum, and my dad, brother and sister live quite close so hopefully i will still get to see them often. Yeah, i was working before all this. I had gone back for a month once they reopened then this happened! And my consultant told me i would need 2 - 3 months off (this was in june) but my chemo doesn't even finish til late november. I hope maxine is ok too. I wouldn't like to go through this on my own and i like talking to others who understand. How are you feeling today? And have they said how soon your chemo will start after surgery? 

  • Hi Amy don't worry about getting in touch same day as long as you're ok that's the main thing. 

    I'm ok getting better each day. Think I over did it a little yesterday and I keep forgetting and using my arm to lift and open things ....oops!!

    It's good that your family are close by, I'm hopefully going to see mum and dad and sisters before I start chemo. They said between 6-12 weeks before I start as the wounds gave to be healed, I suppose that's so I don't pick up any infections once chemo starts. 

    I was running my own business only a small one. I'm a dog groomer and worked from home. I'd only reopened on the 1st June then had to shut down on the 5th July. That was the worse thing .....I felt I was letting all of my customers down. Hope fully this time next year ill be back up and running, fingers crossed. 

    Get plenty of rest. Speak soon xx

  • Hi Amy

     

    how are you!

     

    i am having lymph nodes out on the 1 September 2020. 
     

    I am meeting with the plastic surgeon on the 25 August 2020 to talk reconstruction the same day as the mastectomy and he will make his mind up and also having the other one reduced. I am gonna do my best to have this is one go as I can't go through this twice!

     

    i am so scared horrified what's coming tbh but I am holding it together for my daughter and sister!

     

    i should be having the operation week if the 21 sept 2020 no one can come that bothers me a lot. I can't have a tooth out without being held down and knocked out lol!

     

    lets here about you and how you doing!

     

    your text friend

     

    Maxine

  • Hi maxine. Like i said to karen, im really sorry for the late replies! Ive been feeling so tired but not too bad today. Thats good that they're sorting things out quickly for you. I hated the waiting around. Im scared too about surgery but im just trying to get through chemo 1st then deal with the rest later. Do you feel a bit more relieved now that you know what the plan is? I just want to hurry up and get back to some sort of normality! Hope you're ok

  • Hi karen. How are you? At least you've got plenty of time to recover from surgery before chemo. I worked in a well known fast food restaurant (not helpful lol) and i loved being back with the customers again. I was gutted when i had to stop working! Im sure your customers understand and your health comes 1st. But its frustrating isn't it? Some colleagues even said i was lucky to be having time off, but not in these circumstances. Hope you're recovering well