Hello davey,

                   l well understand your frustrations,l was lucky to have had mine reversed after 14 months but it came with a very, very large bill to be paid for doing so.In my case l reacted to the adhesive,so my site never healed and l trying to stick bags onto raw ,bleeding skin, which does not work well. In the end if l found a bag made a good attachment,l was flushing the contents out whilst still attached to me and l could get two days,maybe three before changing.

                                                                                                                               There are other types of bag that maybe work better, and belts that the pouch can be held in,but it feels like a stone age solution,and l always felt that surely a better solution could be found.All you can do now is see if you can find a better alternative to what you are using at present,which hopefully might prove a little more acceptable than you have at present,

                                                                  take care, David

Sorry for the late reply. Thank you for your message.

Merry Christmas

I had my bladder x prostate x lymph nodes out 5 week ago. If it wasn't for my wife i don't know what i would do. My stomach is so swollen i cant see to put the bag on. The stoma is shrinking really fast and i am fed up of having to change my cloths 2 and 3 times a day because of the leak. I am 82 and my wife told the consultant that she didn't think i could cope with a bag and i think she is right. I couldn't live the rest of my life like this. It's not much of a life is it. 

Regards Ronnie.

Sounds terrible Ronnie. I hope it gets better for you soon. Merry Christmas

Health, wealth and happiness to you for 2023 have a good Christmas 

Regards Ronnie

And you Ronnie

Earlier this year, I was diagnosed with Bladder cancer. After TURBT, I was offered to have my bladder removed and be fitted with a stoma.    No Thank You.    I opted for Quality rather than Quantity of life. I'm now trying BCG Immunotherapy.

I had BCG 6 times and it didn't work for me. I was upset when they told me as i thought that it would cure me but was told it doesn't work for everyone. This is why i had to have the robotic radical cystectomy 6 week ago and doing very well. I have a telephone call appointment with my surgeon on the 3/1 to check up on me. The day after my op the surgeon came to my bed and said we got it all out. That is what i was wanting to hear. They gave me a year to live if i didn't have the op so i had  no option. I wanted to live for my wife and family and know i can do this. Good luck with the BCG and a merry Christmas and a happy new year. By the way i am 82 years old.

Regards from Ronnie

I had BCG 6 times and it didn't work for me. I was upset when they told me as i thought that it would cure me but was told it doesn't work for everyone. This is why i had to have the robotic radical cystectomy 6 week ago and doing very well. I have a telephone call appointment with my surgeon on the 3/1 to check up on me. The day after my op the surgeon came to my bed and said we got it all out. That is what i was wanting to hear. They gave me a year to live if i didn't have the op so i had  no option. I wanted to live for my wife and family and know i can do this. Good luck with the BCG and a merry Christmas and a happy new year. By the way i am 82 years old.

Regards from Ronnie