Diagnosed with triple negative breast cancer

Hello,I have been diagnosed with TNBC and IDC.

The hospital have been brilliant, done the genetic test, MRI and various other biopsies and all results back within a week.

Looking like stage 1/2 lymph nodes clear.

Treatment plan in place, masectomy in about 2 weeks followed by chemo then radiotherepy.

I meet with the surgeon to look at the immediate reconstruction...I feel like I want to press for a double masectomy, has anyone done this? If the genetic test comes back positive I the next 12 weeks I'll have to have the other side taken anyway. 

 

I feel anxious and just so scared of it all,I'm 37 and have a 2 and 7 year old.

 

I'd like to connect with other people who have been through this or starting the journey.

 

Let's support each other 

 

Xx

 

  • Hi there ..

    And welcome to our little chat room... but sorry for the reason you had to join ..

    I came on here in 2017 ... like you so new to breast cancer, and facing a grade 3 ... it's scary ... and never met anyone yet who wasn't...  so let yourself feel those emotions ... and tell yourself it's o.k to cry .. or feel angry or cuss ... at times .. 

    But saying that cancer has come a long way .. and the sad thing is we mostly hear of those that lost their journey ... but there's lots of us living with it ... I started here with 5 /6 other lasses .. all breast buddy's.. all different stages and treatments ... one started a thread called the good and bad... lots came on along the way .. to share good days and hard day's... well most of them now have gone back to their life post cancer... we didnt loose one of those originals ... and one lass had a baby after her treatment finished ..

    So my hunny .. you know the meaning of the word brave ... it's being scared witless but you do it any way...   it's getting feelings out ...  knowing your not alone ... and it's doable ... just get a pair of pink vertual boxing gloves,  and get in this ring with us ... wer all there ... look it in the eye .. and do what you need to do .. I kept thinking of my amazing 5 year old granddaughter... picturing I was fighting to be with her ... and she's now going to be 9 at the end of the year ... she's still my inspiration ... my world .. 

    The scariest part of my whole journey was the start .. it felt like I was getting on the scariest rollercoaster ride... not knowing when or if I was getting off ... but I'm still here .. missing one boob .. but in return got time ... time with my little Emily...

    So hold on in there .. it won't be a walk in the park... but you can do this ... my tea shirt says .. "cancer touched my boob so I kicked it's assss "  

    Sending you a vertual hug... Chrissie xx

  • Hi,

    I was diagnosed July last year at the age of 31. I wasnt Triple Negative, but i had IDC grade 3 and DCIS. 

    I had a double mastectomy in december, even though one breast was healthy. It depends on the consultant/surgeon and the hospital itself as to whether they will allow it and they take into account numerous factors.

    My consultant was great and backed me with my choice to have a double with immediate reconstruction using implants. I had chemo before surgery and no radiotherapy after so implants was a suitable choice.

    If you are likely to radiotherapy they may suggest delayed reconstruction if you want i lmplants as it can damage them.

    Happy to answer any questions you have, if i can. x

  • Ahh such kind and uplifting words, thank you Chrissie.

     

    They said I'm stage 1/2 grade 3. I feel like I'm being weighed down with thoughts of it coming back once I get through this but I hope that once treatment starts I can start to take it day by day rather than jumping ahead.

     

    It's so good to hear stories of the other girls you know on here particularly the one who went on to have a baby..how lovely!!!

     

    I really appreciate you reaching out to me 

     

    Xxx

  • Thanks for your message.

     

    I'm pretty sure they will let me go ahead with a double, I meet the surgeon next thursday to go through all the options.

     

    The radiotherepy part is a bother, I've read up on the effect it can have on an implant and scar tissue..to be honest I hate the thought of implants..maybe I'll change my mind after the meeting.

     

    So much to consider it's difficult but I really want both sides done, not for vanity but a bit more peace of mind.

     

    I will defo message you if I have any questions or advice.

     

    I'm pleased you sound to be doing well

     

    Xxx

  • Thats good they will support your decision.

    Completley understand - hope the meeting with surgeon goes well and helps with your choices.

    Take care x

  • Hi ...

    Just a after thought ...

    You said later you'll be worried it will come back ... the only thing I've learned is once diagnosed , it never completely leaves ... it stays there in a little corner of our minds , and when we get a headache... stomach upset .. pain anywhere ... that little thought pops up and says "what if"  

    But if you know that and are ready ... we are then back in charge, and know it's only normal... get checked ... and usually all's well ... all those I know have that ... 

    But cancer changes us ... not always in a bad way ... we look at things differently comming out the cancer journey... every day can feel like a little mirical ... things that niggle us before , are now not worth the energy ... we see things with new eyes ... make every day count ... or like some get consumed in thinking it may come back ... coz that's what cancer wants us to do ... but don't let it ... put it in a cupboard in a far off place and get on with living and laughing after ... that way as we go through the storm and see the rainbow .. we can stick two fingers up to cancer... 

    It's not about winning or loosing... it's about doing what you have to do ... you'll find lots of us on here, who have been where you are now ... fighting with you ... for your babies ... take care lovely lass ... Chrissie x