Thank you so much for your reply.  I will definitely let you know how I get on. Hopefully the results will not take too long to come through. Hope you are keeping well now. Take care.

Hi Ellieanne, 

Welcome to the forum I'm new today myself it's good to be able to come some where and talk about how you are feeling, we are all human and get scared when we have things happening to our bodies. You did really well getting over cancer all those years ago must have been a worry at the time I had the same thing as you I'm in my 60s, I was worring at the time and was in hospital withing 2 weeks had ct scans and a hysteroscope. I had polyps in my uterus and had then taken away I'd suffered fibroids from in my 20s but they never treated them my womd was 16 weeks size of being pregnant. I'm waiting for my appointment on Wednesday for swollen lymph glands taken over 2 months for the doctors to take me serous and one said I'd no lymph nodes that really made me think how can she say that. I'm worried and I think we do worry we are human and so much comes into your mind but I've started to do jobs around the house to not think. I've a Bosniak complex left kidney cycst 10cm was 12 cm shrank 2cm last year but it's been 9 year's I'm still here but shrinking made me think its not dormant means it's moved but put the thought out my head. It's a cancer you cannot biopsy it's a case of wait till your kidneys bleed and starts to playing up so  had to be positive, had cancer polyps taken out of my bowel and bladder the polyps seem to be quite found of me. My lymph nodes all swollen could be the kidney cancer as gone past the kidney to the lymphatic system, so I've decided not going to worry what comes my way and just deal with it at the time could be just infection. I keep upbeat my children are adults they worry and I'm not showing them that I am I've lived caring for 3 members of my family with terninal cancer as it's in my mother's family and my fathers. Had 3 nephews with brain cancer when they reached 3 years old all are still here one is 28 know but I he's in a brace bolted to his head and a pole in his spine and is in a wheelchair. Keep us updated how you get on and please come in the forum have a chat we all are here for the same worries and concerns.

Enjoy your day!

Hi Ellieanne,

I fully appreciate your concerns, but try to follow Pixiedee's advice and live life one day at a time.  Worrying won't make any of this go away, so why do we all do it? I wish that I could supply an answer, but I don't know.

I can undrstand that you don't want to put your family through it all again. They are now considerably older than they were last time you were diagnosed, so should be able to give you more support this time around.  However, you are getting ahead of yourself. It shouldn't be long befor you get the results of your tests. If the worst should come to the worst, you have done it before, so you know that you can do it again.

I have just received a letter from my surgeon this morning advising me that they have changed their protocols in the hospital and, now only plan to review patients for 5 years after treatment, so they have no plans to check me out every year, as they've been doing. I must confess that I feel as if I've just been cast loose in a boat in the sea, without a paddle, but I guess that I'll just have to get on with it.

I hope that you get your results soon and that they don't show up anything untoward.

Kind regards,

Jolamine xx

Hi Pixedee ,thank you for your message. It is a case now of one step at a time and like you I m trying to to do  what I did last time and worry only when I need to. My children have grown up now and one of them is a nurse who insists he is with me when I get the results.  I have always found the waiting very difficult but know what will be will be. Had my MRI scan today and  hopefully that I'll be the last test but not counting on it as I know how this all works although with the cv19  who knows!!! I hope all goes welll with you and let me know how things go for you. Take care for now.

Hi jolamine, I can remember when I was told they would no  longer be reviewing me every year. I also felt a bit abandoned by them. Unfortunately  as you say you have no choice but to go with it. The only thing you can do is be vigilant and do your checks regularly and if worried at all get in touch with your doctor and you will be fast tracked. About 4 years after my breast dagnosis I found a lump under my arm. Within 2 weeks I  was back up  the breast unit where it was discovered I had a sebacious cyst which they dealt with the following week.  Scary but so relieved it as nothing and dealt with so quickly. Take care .

Hi Ellieanne,

I suspect that we all feel like this when we are discharged. I found both lumps quite early on, as my mum had breast cancer and, I was always breast aware. My concern now is that with both breasts removed, it makes it harder to find any anomalies. Still, I suppose that I've been lucky to have been given annual checks until now.

I hope that your MRI went well today. did they give you any indication of when you might get your results?

Kind regards,

Jolamine xx

Hi jolamine, No they didn't say how long it will be but my son says it is the biopsies that take the time to come back but he reckons it will be soon. It was a lot less daunting having the MRI scan and luckily felt calm all the way through. I ended up with a high on Sunday as my children came over in the afternoon and we had an Indian takeaway  in the evening. We always have a lot of fun whenever we  are together and it really lifted me.  With your current situation I think all you can now do is watch out for anything that doesn't feel right. We do know our own bodies and any concerns with how we are feeling will be taken seriously. I was always told don't think you are  wasting your  doctor's time if worried as they would rather see you then you leave it.  I am sure you will be fine and you sound a very strong woman to have gone through all this twice and be so upbeat. Take care .x

Hi, 

Just thought I would let you know that my hospital have rung and I am seeing my gynaecologist this Thursday at  2.30pm. I have asked if I can take someone in and they have said yes so my son who is a nurse has said he wants to be there as he may have things he wants to ask. Husband is going to wait outside. Keep your fingers crossed for me and I will let you know what happens. Take care. X