AML Kidney

Hello all,

I was diagnosed with an AML on my kidney 3 years ago. It has continued to be monitored as under 4cm. Last year I gave birth to a beautiful baby boy, I recieved scans during pregnancy to check the AML size however it remained manageable. However my consultant advised on a caesarean to be on the safe side. After my baby was born I recieved another scan and was told it had shrank back down following my pregnancy. I was sent for a CT scan last week and yesterday the consultants secretary rang me and asked me to come down Monday at 9am to see the consultant. I asked if she could give me any information and I was told no, not over the phone, however if I wished I could bring someone with me. I am now in a complete panic and thinking the worst, that it's turned into something a lot more serious. I couldn't sleep last night and have been in a state all day! I wondered if anyone had experience with AML's or something similar, that would share their story with me in the hope of calming me down a little! Thank you in advance x

  • Hi Kate7969,

    Welcome to Cancer Chat. I'm sorry no-one got back to you sooner - I see that you have had your appointment by now, so I hope things went OK and that you've been able to find out more.

    Do use this forum as much as you'd like at any point for support. In the meantime if anyone here has any similar experience then hopefully they'll be along soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Ben, thank you so much for your reply. The appointment didn't go good. The doctor said it's not what they thought, and it's a tumour. They have to remove it and part of my kidney. It will then go away and get tested for cancer which will take around two weeks. I am in an absolute state of shock and panic. Every time I look at my baby boy I burst into tears, and I now have the agonising wait for the consultant to ring with an appointment for the operation, and then the biopsy results to come back. If it is cancer they spoke about needing to check if it's spread. I just can't get my head around it all. I feel like I'm in a bad dream. X

  • Ah I'm really sorry to hear this. No doubt it feels like a bit of a whirlwind at the moment and I can understand your feelings. I'm sure the emotions will go up and down for a while, and hopefully once you have next steps in place - a time for your appointment and then anything following that - things will feel more manageable.

    Take as much as time as you need or can to look after yourself among all this. And perhaps try to carry on as normally as possible, keeping busy, while waiting for the next appointment.

    This forum is always here if you need support, or just to write things down, at any point.

    I hope the appointment gets confirmed soon for you.

    Ben