Hi

I am so very pleased there was no spread and no LN involvement.  You must be very relieved.  I hope your recovery continues well and that the results of the genetic tests are also good.

My test is sent to the USA so I understand and so I am still waiting for that.  I got my lymph node results back 2 weeks ago today and they were negative which was a MASSIVE relief. I am now discharged from surgical and onto oncology.

Once the prosigna results are back from the USA, I will be back to the oncologist to find out my treatment plan.  I will definitely have tamoxifen and plan atm is just radiotherapy but depending on these test results, I cld require chemo too.  Mine is high grade, grade 3 so I am bracing myself to be told chemo.

But recently I have become almost obsessive about metastatic breast cancer and the worry about trying to live my life with that hanging over my head.  These results shld give me a low, medium or high risk for a reoccurance in the nxt 10 yrs- assume that also means spread too? My age and grade I think might be against me but all questions for when I see the oncologist.

I live in Hampshire and just wish I could attend some support groups in person but covid has put a stop to that sort of thing.

Sending love and best wishes and keep us posted.

xx

Hi there 

I was interested in your post and wondered how things are now? I had an ADH diagnosis and then my excision biopsy and lumpectomy on Friday. I'm now waiting for the results to see if it is ADH or if it will be upgraded. I'm not sure what the odds are and if it is upgraded what happens next? 
Thanks x

Hi Milly

im sorry to hear about your, ADH but sounds as though they’ve been swift removing it.

My first biospsy diagnosis was ADH but the consultant said he wanted to do another biopsy to double check because about 15% get upgraded. When mine was re biopsied it came back as DCIS Intermediate grade , I should add however he always thought mine was DCIS and was shocked when it came back as ADH. I’m have small A cups and so because of that had to have a mastectomy. I was very lucky, finding the whole process easier than I expected, I had an implant and got back to normal very quickly, now it’s annual checkups going fwd. Because I had mastectomy I had no radiation.

They all seem to take a slightly different approach but I was told if mine stayed at ADH I would just be monitored, if DCIS with lumpectomy there may be some radiation.

Fingers crossed for you that yours stays as ADH, the results waiting is horrible. I stayed really positive and focused with mine and I think it really helped me through, I never lost sight of how early stage this was and if was DCIS is 100% treatable, so ADH is even better.

sending lots of love to you

B xx

That's really reassuring - thank you. I'm really pleased things have gone well for you - really positive news. Yes the waiting is hard - fingers crossed it stays as ADH. 15% sounds like v good odds to me! 
I appreciate your response - thanks xx

Hi There

How are things?

Just wondered how you are and how things are progressing? I only saw your last post today, I must have missed it on my emails.

I’m sorry you are worrying about things spreading but yours has been removed and your LN were clear were they not and radiation is a safety precaution isn’t it, plus the tamoxifen reduces recurrence chance by 25% on top of that. Are the prosigna results genetic results if so how does that make a difference to your treatment now, sorry I don’t understand it all I thought the genetics tell you possible recurrence chances later in life. My first genetics appointment isn’t until Feb.

Its funny isn’t it that you think once things are gone you’d automatically feel better but I was anxious after and thought about reoccurrence too so I understand exactly where you are coming from, but I have told myself I’m not letting it take over me like that and I have been lucky really, we never know what’s going to happen in life so I have taken this as a chance to reevaluate and make changes for the better. Also you will be checked on a regular basis and if, a big if something comes back it will be caught really really early, so don’t drive yourself mad by thinking of metastatic cancer, we don’t know what will happen tomorrow let alone years down the line. Sheryl Crow had DCIS at 44 with a lumpectomy and radiation she’s 58 now, so there’s a positive story.

If you want to chat, anytime......

On a more humorous note ( some may think not, but it’s about myself so I can laugh) I have an appointment on Friday for a prosthetic nipple, can you imagine lol, the guy said he can make me one with a piercing too if I like  lol and he will make me 4-6 of them, so should be interesting. Not planning on pritt-sticking it on every day but thought I may want to whip one out of the draw in the summer lol

Anyway take care and importantly  stay positive 

B xx

Hi B

Sorry for delay in replying. I dont know where the time has gone! 

Hope you are well.

I think you have removed it now but did you leave your email address? I was going to drop you an email.

T xxx

Hi T, 

As personal details are not allowed to be shared on the forum we would suggest using our private messaging function if you'd like to get in touch with B.

To find out more, just click here.

Kind regards,

Steph, Cancer Chat Moderator

 Hi I did add it but they told me I wasn’t allowed and took it off the post. I will try to add you as a friend and message you privately so that I can give it to you that way xx

Hi there

If you click on TBT76's name in the post above or click on their avatar it takes you to their profile which is here www.cancerresearchuk.org/.../tbt76 

You can see that there is a button on their profile which says +Add Friend. If you click that it will send them a friend request.

I hope that helps :)