Hi Simon, 

My last Calprotectin Level was 3305 and I had a Colonoscopy procedure on the 3rd of March, I am still waiting on my biopsy results. I hope you get some clarity soon and try not to overthink which is hard when you are feeling anxious. 

Please keep us updated :) 

Jem  

Hi Jem,

How are you? Did you get your results back yet? I hope all is well.

Simon

Hi, yes I finally got them back!

The biopsy reported Acute Terminal Ilietus.. Not sure what that means but it's either a form of Chron's Disease or something else. I will let you know what they say when I get to an appointment with a specialist.

I hope you are both well?

How are you doing? Xx 

I think that's chrones. Very treatable so I'm told. I think I might be spelling chrones wrong :-). Apparently cutting out alcohol helps, if you drink alcohol that is, and reducing stress.

I'm ok myself, but my calprotectin levels are high again. I've had the gold standard of tests (colonoscopy, gastroscopy,  ct scan, camera endoscopy, blood and stool tests, physical examination) but they can't find any significant problem or reason why my calprotectin levels are so high. So I should be happy, right? But it does make me question if they've missed something......since no one can tell me what's the cause of these false positives.

Simon

I think that's chrones. Very treatable so I'm told. I think I might be spelling chrones wrong :-). Apparently cutting out alcohol helps, if you drink alcohol that is, and reducing stress.

I'm ok myself, but my calprotectin levels are high again. I've had the gold standard of tests (colonoscopy, gastroscopy,  ct scan, camera endoscopy, blood and stool tests, physical examination) but they can't find any significant problem or reason why my calprotectin levels are so high. So I should be happy, right? But it does make me question if they've missed something......since no one can tell me what's the cause of these false positives.

Simon

I am going through the same! High calprotection! Had colonoscopy, mri, xray, can't find anything! Im having the pill cam soon! Hope to get some answers 

Last year my calprotectin was over 600. I had ct, colonoscopy, gastroscopy, biopsies, and pill cam. This year my calprotectin was 430. I had mri. Every test has shown nothing wrong apart from diverticular. Now diverticular can raise calprotectin, but only when infected, and when they've tested me they didn't find an infection. So I'm left not knowing. But my symptoms (runny stools) have all but disappeared by moving onto a high fibre diet. Calprotectin does take many months to disappear from the system, so I can only think that I had an infection, but it resolved itself by the time they did the tests, and now it's a waiting game for the calprotectin to drop. That's my best guess. What's your story?