Hi Simon, 

My last Calprotectin Level was 3305 and I had a Colonoscopy procedure on the 3rd of March, I am still waiting on my biopsy results. I hope you get some clarity soon and try not to overthink which is hard when you are feeling anxious. 

Please keep us updated :) 

Jem  

Hi Simon, 

My last Calprotectin Level was 3305 and I had a Colonoscopy procedure on the 3rd of March, I am still waiting on my biopsy results. I hope you get some clarity soon and try not to overthink which is hard when you are feeling anxious. 

Please keep us updated :) 

Jem  

Best wishes Jem. My calprotectin was listed as greater than 600 (600 being the cut off point in the UK). So my actual level could have been in the thousands. I'll never know the exact reading. The final outcome for me was that i had an infection and diverticuler, so thankfully nothing too serious. 8 months on, after letting my diet slip, I'm trying to eat more foods with fibre in them, to control the diverticuler desease.

Thank you for your good wishes. 

I thought I might have had an infection but my stool sample was negative so that's why my physician referred me for a Colonoscopy on the side of caution. 

I am trying to eat better myself and have a balance of protein and vegetables to help regulate my bowels. 

My bowels have been fine since the clear out so it's probably nothing but I am not a fan of the wait. 

Jem x

Let me know if you need any advice, from someone who has been through it. And let me know how it goes.

Hi Jem,

How are you? Did you get your results back yet? I hope all is well.

Simon

Hi, yes I finally got them back!

The biopsy reported Acute Terminal Ilietus.. Not sure what that means but it's either a form of Chron's Disease or something else. I will let you know what they say when I get to an appointment with a specialist.

I hope you are both well?

How are you doing? Xx 

I think that's chrones. Very treatable so I'm told. I think I might be spelling chrones wrong :-). Apparently cutting out alcohol helps, if you drink alcohol that is, and reducing stress.

I'm ok myself, but my calprotectin levels are high again. I've had the gold standard of tests (colonoscopy, gastroscopy,  ct scan, camera endoscopy, blood and stool tests, physical examination) but they can't find any significant problem or reason why my calprotectin levels are so high. So I should be happy, right? But it does make me question if they've missed something......since no one can tell me what's the cause of these false positives.

Simon

I am going through the same! High calprotection! Had colonoscopy, mri, xray, can't find anything! Im having the pill cam soon! Hope to get some answers 

Last year my calprotectin was over 600. I had ct, colonoscopy, gastroscopy, biopsies, and pill cam. This year my calprotectin was 430. I had mri. Every test has shown nothing wrong apart from diverticular. Now diverticular can raise calprotectin, but only when infected, and when they've tested me they didn't find an infection. So I'm left not knowing. But my symptoms (runny stools) have all but disappeared by moving onto a high fibre diet. Calprotectin does take many months to disappear from the system, so I can only think that I had an infection, but it resolved itself by the time they did the tests, and now it's a waiting game for the calprotectin to drop. That's my best guess. What's your story?

Hello, what diet would you recommend for someone diagnosed with high inflammation? Thank you 

Hi IKPT and welcome to the forum.

I just wanted to make a quick post as I noticed you were asking Shaz78 a question.

Unfortunately they haven't been on the forum for some time now, so there's a chance you may not get a reply.

I really hope that won't be the case, but if you don't hear back from them or anyone else on this discussion then you're welcome to start your own discussion about this or you can try reaching out to others on more recent discussions you find about this topic on the forum.

Kind regards,

Steph, Cancer Chat Moderator